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Focus group study of endometriosis: struggle, loss and the medical merry-go-round

Cox, Helen, Henderson, Lorraine, Anderson, Natalie, Cagliarini, Glenda and Ski, Chantal 2003, Focus group study of endometriosis: struggle, loss and the medical merry-go-round, International journal of nursing practice, vol. 9, no. 1, pp. 2-9, doi: 10.1046/j.1440-172X.2003.00396.x.

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Title Focus group study of endometriosis: struggle, loss and the medical merry-go-round
Author(s) Cox, Helen
Henderson, Lorraine
Anderson, Natalie
Cagliarini, Glenda
Ski, Chantal
Journal name International journal of nursing practice
Volume number 9
Issue number 1
Start page 2
End page 9
Publisher Blackwell Science
Place of publication Carlton, Vic.
Publication date 2003-02
ISSN 1322-7114
1440-172X
Keyword(s) endometriosis
trivialisation
delayed diagnosis
loss
taking control
Summary Women with endometriosis experience a range of problems for which they may or may not be adequately supported. This paper reports on one aspect of a study conducted at the Epworth Hospital, Melbourne, to identify the information needs of women facing laparoscopy for endometriosis. A number of focus groups were conducted that provided women with a forum for communicating their experiences of endometriosis and laparoscopy. The findings include the experiences of 61 women who described the lack of support, the struggles and the losses involved in living with endometriosis. By far the worst experience that these women described was the encounter with health professionals and the ways in which their symptoms were trivialised and dismissed. There is a great deal for nurses to learn about the experience of living with endometriosis if they are to support women with this chronic illness in their search for well-being.
Language eng
DOI 10.1046/j.1440-172X.2003.00396.x
Field of Research 111099 Nursing not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
Persistent URL http://hdl.handle.net/10536/DRO/DU:30002209

Document type: Journal Article
Collection: School of Nursing and Midwifery
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