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Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes

Davis, Elise, Waters, Elizabeth, Mackinnon, Andrew, Reddihough, Dinah, Graham, H. Kerr, Mehmet-Radji, Ozlem and Boyd, Roslyn 2006, Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes, Developmental medicine and child neurology, vol. 48, no. 4, pp. 311-318, doi: 10.1017/S0012162206000673.

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Title Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes
Author(s) Davis, Elise
Waters, Elizabeth
Mackinnon, Andrew
Reddihough, Dinah
Graham, H. Kerr
Mehmet-Radji, Ozlem
Boyd, Roslyn
Journal name Developmental medicine and child neurology
Volume number 48
Issue number 4
Start page 311
End page 318
Publisher Mac Keith Press
Place of publication London, England
Publication date 2006
ISSN 0012-1622
Summary With an increasing number of paediatric quality of life (QOL) instruments being developed, it is becoming difficult for researchers and clinicians to select the most appropriate instrument. Reviews of QOL instruments tend to report only basic properties of the instruments such as domains and psychometric properties. This paper seeks to appraise critically the conceptual underpinnings of paediatric QOL instruments. A systematic review was conducted to identify QOL instruments for children aged 0 to 12 years, and to examine and compare their conceptual frameworks, definitions employed, and structure. Both generic and condition-specific measures were reviewed. Fourteen generic and 25 condition-specific QOL instruments were identified. Eleven types of definition of QOL and health-related QOL and three theories of QOL were identified. QOL was measured by a variety of domains including emotional, social and physical health, and well-being. Items commonly assessed difficulties, or intensity/frequency of feelings/symptoms, in contrast to positive aspects of life and happiness. The findings highlight the diversity that is apparent in the conceptualization of paediatric QOL and draw attention to the lack of empirical evidence for many of the fundamental assumptions. The impact of the conceptual underpinnings of the instruments on the resulting QOL scores is discussed.
Language eng
DOI 10.1017/S0012162206000673
Field of Research 111717 Primary Health Care
Socio Economic Objective 970111 Expanding Knowledge in the Medical and Health Sciences
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2006 Mac Keith Press
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Document type: Journal Article
Collection: School of Health and Social Development
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