Work and recreational changes among people with neurological illness and their caregivers

McCabe, Marita, Roberts, Candice and Firth, Lucy 2008, Work and recreational changes among people with neurological illness and their caregivers, Disability and rehabilitation, vol. 30, no. 8, pp. 600-610.


Title Work and recreational changes among people with neurological illness and their caregivers
Author(s) McCabe, Marita
Roberts, Candice
Firth, Lucy
Journal name Disability and rehabilitation
Volume number 30
Issue number 8
Start page 600
End page 610
Publisher Informa Healthcare
Place of publication London
Publication date 2008
ISSN 0963-8288
Keyword(s) work
recreational activities
neurological illnesses
caregivers
Summary Background. Progressive neurological illnesses alter the health and well-being of people who experience them, and frequently lead to changes in the activities of both patients and their carers.

Purpose. The current study investigated changes in work and recreational activities among people with four of these illnesses.

Method. In total, the following numbers of people with neurological illnesses and their carers participated in the study: 28 with multiple sclerosis; 27 with motor neurone disease; 31 with Parkinson's; and 24 with Huntingtons disease. In addition, 28 professionals who worked with these populations participated in the study. Individual interviews were conducted with each of the above respondents to determine the impact of the neurological illness.

Results. The results demonstrated a high level of agreement from each of the participants. Most of the people with the illnesses and many of the carers had reduced their level of paid work. Generally, all groups of respondents perceived these changes as being negative. Changes in recreational activities were also seen to be primarily negative.

Conclusions. These results are discussed in terms of proposed prevention and intervention programmes to prepare patients and their carers for the changes that result from the neurological illness, strategies to stay at work longer and to help them develop alternative strategies to assist them in filling the gap left in their lives that was previously occupied by paid work.
Language eng
Field of Research 110904 Neurology and Neuromuscular Diseases
HERDC Research category C1 Refereed article in a scholarly journal
HERDC collection year 2007
Copyright notice ©2008, Informa UK Ltd.
Persistent URL http://hdl.handle.net/10536/DRO/DU:30007580

Document type: Journal Article
Collection: School of Psychology
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