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Cervical cancer services for Indigenous Women: Advocacy, Community-Based Research and Policy Change in Australia

Manderson, Lenore and Hoban, Elizabeth 2006, Cervical cancer services for Indigenous Women: Advocacy, Community-Based Research and Policy Change in Australia, Women & Health, vol. 43, no. 4, pp. 69-88, doi: 10.1300/J013v43n04_05.

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Title Cervical cancer services for Indigenous Women: Advocacy, Community-Based Research and Policy Change in Australia
Author(s) Manderson, Lenore
Hoban, Elizabeth
Journal name Women & Health
Volume number 43
Issue number 4
Start page 69
End page 88
Publisher Haworth Medical Press
Place of publication Binghamton, N.Y.
Publication date 2006-10
ISSN 0363-0242
Keyword(s) Australia
advocacy
cervical cancer
Indigenous health
research ethics
Summary Collaborative research undertaken in the state of Queensland, Australia, resulted in major changes in cervical cancer screening and treatment for Indigenous women. Guided by an Indigenous statewide reference group and with an Indigenous researcher playing a lead role, qualitative data were collected using interviews, focus groups, and larger community meetings; and case studies were conducted with health workers and community members from diverse rural, remote and urban communities, to explore the different cultural and structural factors affecting understanding and awareness of cervical cancer and Indigenous women's use of and access to health services for screening, diagnosis and treatment. These data were supplemented by an analysis of clinical data and health service checklists. We discuss the methodology and summarize the key social and structural factors that discourage women from presenting for screening or returning for follow-up. These include women's misunderstanding of cervical cancer screening, fear of cancer, distrust of health services, poor recall and follow-up systems, and the economic and social burden to women presenting for treatment. We describe how the research process and subsequent activities provided Indigenous women with a vehicle for their own advocacy, resulting in important policy and program changes.
Language eng
DOI 10.1300/J013v43n04_05
Field of Research 111708 Health and Community Services
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2006, The Haworth Press, Inc.
Persistent URL http://hdl.handle.net/10536/DRO/DU:30009066

Document type: Journal Article
Collection: School of Health and Social Development
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