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Information systems and healthcare XXVIII : the information needs of family carers in collaborative healthcare

Nguyen, Lemai, Shanks, Graeme, Vetere, Frank and Howard, Steve 2008, Information systems and healthcare XXVIII : the information needs of family carers in collaborative healthcare, Communications of the association for information systems, vol. 23, pp. 179-192.

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Title Information systems and healthcare XXVIII : the information needs of family carers in collaborative healthcare
Author(s) Nguyen, Lemai
Shanks, Graeme
Vetere, Frank
Howard, Steve
Journal name Communications of the association for information systems
Volume number 23
Start page 179
End page 192
Publisher Association for Information Systems
Place of publication Atlanta, Ga.
Publication date 2008
ISSN 1529-3181
Keyword(s) health information systems
information needs
culture
family carer
cancer
Summary While the important role of family carers has been increasingly recognized in healthcare service provision, particularly for patients with acute or chronic illnesses, the family carer's information needs have not been well understood or adequately supported by health information systems. In this study, we explore the information needs of a family carer by analyzing the extensive online diary of a Vietnamese family carer supporting his wife, who was a lung cancer patient. The study provides a deep understanding of the information needs of the family carer and suggests a four-stage information journey model including identification, searching, interpretation and information sharing, and collaboration. A number of themes emerge from the study including the key role of the carer, information filtering by the carer, information sharing and collaboration, and the influence of Vietnamese culture. The paper concludes with a discussion of the requirements for health information systems that meet the needs of family carers.
Language eng
Field of Research 111711 Health Information Systems (incl Surveillance)
HERDC Research category C1 Refereed article in a scholarly journal
Persistent URL http://hdl.handle.net/10536/DRO/DU:30017473

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