The decision-making journey of a family carer : information and social needs in a cultural context

Nguyen, Lemai, Shanks, G., Vetere, F. and Howard, S. 2008, The decision-making journey of a family carer : information and social needs in a cultural context, in Collaborative decision making : perspectives and challenges : Final program for the International Conference on Collaborative Decision Making, IOS Press, Amsterdam, The Netherlands, pp. 139-149.

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Title The decision-making journey of a family carer : information and social needs in a cultural context
Author(s) Nguyen, Lemai
Shanks, G.
Vetere, F.
Howard, S.
Conference name Collaborative Decision Making Conference (2008 : Toulouse, France)
Conference location Toulouse, France
Conference dates 1-4 July 2008
Title of proceedings Collaborative decision making : perspectives and challenges : Final program for the International Conference on Collaborative Decision Making
Editor(s) Zaraté, Pascale
Publication date 2008
Conference series International Conference on Collaborative Decision Making
Start page 139
End page 149
Total pages x, 504 p.
Publisher IOS Press
Place of publication Amsterdam, The Netherlands
Summary While the important role of family as carer has been increasingly recognised in healthcare service provision, particularly for patients with acute or chronic illnesses, the carer's information and social needs have not been well understood and adequately supported. In order to provide continuous and home-based care for the patient, and to make informed decisions about the care, a family carer needs sufficient access to medical information in general, the patient's health information specifically, and supportive care services. Two key challenges are the carer's lack of medical knowledge and the many carers with non-English speaking and different cultural backgrounds. The informational and social needs of family carers are not yet well understood. This paper analyses the web-log of a husband-carer who provided support for his wife, who at the time of care was a lung cancer patient. It examines the decision-making journey of the carer and identifies the key issues faced in terms of informational and social practices surrounding care provision.
ISBN 9781586038816
Language eng
Field of Research 080702 Health Informatics
HERDC Research category E1 Full written paper - refereed
Persistent URL http://hdl.handle.net/10536/DRO/DU:30018243

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