Service and support needs of Australian carers supporting a family member with disability at home

Burton-Smith, Rosanne M., McVilly, Keith, Yazbeck, Marie, Parmenter, Trevor and Tsutsui, Takako 2009, Service and support needs of Australian carers supporting a family member with disability at home, Journal of intellectual and developmental disability, vol. 34, no. 3, pp. 1-9, doi: 10.1080/13668250903103668.

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Title Service and support needs of Australian carers supporting a family member with disability at home
Author(s) Burton-Smith, Rosanne M.
McVilly, Keith
Yazbeck, Marie
Parmenter, Trevor
Tsutsui, Takako
Journal name Journal of intellectual and developmental disability
Volume number 34
Issue number 3
Start page 1
End page 9
Total pages 9
Publisher Informa Healthcare
Place of publication Abingdon, England
Publication date 2009
ISSN 1366-8250
Keyword(s) carers
family quality of life
support needs
service needs
mixed methods
Summary Background As part of an international, multicentre project, the service and support needs of Australian family carers were investigated.

Method A sample of 1,390, 448 family carers completed a self-report survey, including an adaptation of the Family Needs Survey (FNS) and several open-ended questions. A mixed method design was used, employing quantitative and qualitative analyses.

Results On the FNS the most frequently endorsed items were those relating to the need for information about services and, in particular, future, out-of-home accommodation. Similarly, the need for respite services was endorsed by over 80% of respondents. Comments indicated that access to and the quality of respite, day support, and therapy programs were a priority.

Conclusions Participants expressed the need for greater access to information. Access to appropriate respite options, together with quality day support and therapy services, remain a priority for family carers.
Language eng
DOI 10.1080/13668250903103668
Field of Research 170113 Social and Community Psychology
Socio Economic Objective 970117 Expanding Knowledge in Psychology and Cognitive Sciences
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2009, Australasian Society for the Study of Intellectual Disability Inc.
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Document type: Journal Article
Collection: School of Psychology
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