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Experiences of disability consumer-directed care users in Australia : results from a longitudinal qualitative study

Ottmann, Goetz, Laragy, Carmel and Haddon, Michelle 2009, Experiences of disability consumer-directed care users in Australia : results from a longitudinal qualitative study, Health and social care in the community, vol. 17, no. 5, pp. 466-475, doi: 10.1111/j.1365-2524.2009.00851.x.

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Title Experiences of disability consumer-directed care users in Australia : results from a longitudinal qualitative study
Author(s) Ottmann, Goetz
Laragy, Carmel
Haddon, Michelle
Journal name Health and social care in the community
Volume number 17
Issue number 5
Start page 466
End page 475
Total pages 10
Publisher Wiley-Blackwell Publishing Ltd
Place of publication New York, N. Y.
Publication date 2009-09
ISSN 0966-0410
1365-2524
Keyword(s) community care
consumer-directed care
disability services
home care
empowerment
policy development
Summary The rapidly growing body of literature suggests that Consumer-directed Care (CDC) has the potential to empower consumers and improve the flexibility and quality of care. However, reports highlighting quality and risk concerns associated with CDC focusing on a longer time frame have been few. This paper presents the findings from a qualitative longitudinal evaluation of an Australian CDC programme. Focusing on the period between 2003 and 2008, it reports on the experiences of 12 families caring for a dependent family member. It is based on two external evaluations completed 6 and 36 months after enrolment, and one internal evaluation completed 48 months after enrolment. The findings were triangulated with internal memos, reports and minutes of meetings, as well as with the theoretical literature. The study demonstrates that CDC harbours considerable benefits for people with disabilities and their carers. However, the study also suggests that, over time, carers may experience an increased sense of isolation and lack of support as a result of their involvement in the CDC programme. The paper argues that the development of safeguards addressing these weaknesses is crucial for the sustainability of CDC programmes in contexts where risk cannot be simply transferred onto consumers.
Notes Published Online: 27 Apr 2009
Language eng
DOI 10.1111/j.1365-2524.2009.00851.x
Field of Research 111702 Aged Health Care
Socio Economic Objective 920299 Health and Support Services not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
HERDC collection year 2009
Copyright notice ©2009, The Authors
Persistent URL http://hdl.handle.net/10536/DRO/DU:30019368

Document type: Journal Article
Collection: School of Nursing and Midwifery
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Citation counts: TR Web of Science Citation Count  Cited 11 times in TR Web of Science
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Created: Fri, 11 Sep 2009, 12:34:39 EST by Goetz Ottmann

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