Mapping the information resources available to patients with colorectal cancer

King, S. J., Livingston, P. M., Turner, L., Byrne, K., John, M., Sidwell, J. and Scott, C. 2010, Mapping the information resources available to patients with colorectal cancer, European journal of cancer care, vol. 19, no. 4, pp. 492-500, doi: 10.1111/j.1365-2354.2009.01080.x.

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Title Mapping the information resources available to patients with colorectal cancer
Author(s) King, S. J.
Livingston, P. M.ORCID iD for Livingston, P. M.
Turner, L.
Byrne, K.
John, M.
Sidwell, J.
Scott, C.
Journal name European journal of cancer care
Volume number 19
Issue number 4
Start page 492
End page 500
Total pages 9
Publisher [Marston Book Services]
Place of publication London, England
Publication date 2010-07
ISSN 0961-5423
Keyword(s) oncology
colorectal cancer
information resources
quality health information assessment tool
quality improvement process
Summary The objectives of this study were to identify gaps in information provision along the colorectal cancer (CRC) treatment pathway as provided by health services within the North Eastern Metropolitan Integrated Cancer Service in Victoria Australia; to evaluate the information and recommend consistent, high quality health information resources; and to recommend strategies to improve delivery of patient information. A random sample of health professionals (n= 47) from various disciplines at eight health service sites participated in semi-structured interviews regarding the types of information they provided to CRC patients. Information items were mapped against a published CRC patient management framework and evaluated. A total of 193 information items were collected with 24 items specific to CRC. Gaps in information provision were evident in the community, at diagnosis, in clinics, when treatment was determined and when completed. The quality of information delivery to CRC patients across the public health sites was variable. Resources were often unavailable, out of date and inaccessible in other languages. Results indicate a need to improve health information availability and resource delivery to all CRC patients across different health services particularly at diagnosis and after treatment. Further research is required to determine patient preferences for information about CRC.
Language eng
DOI 10.1111/j.1365-2354.2009.01080.x
Field of Research 111205 Chemotherapy
111712 Health Promotion
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2009, The Authors
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Document type: Journal Article
Collection: School of Nursing and Midwifery
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