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Stakeholder satisfaction with the Australian Rheumatology Association Database (ARAD)

Briggs, Andrew M., March, Lyn, Van Den Haak, Rosemarie, Hay, Nino, Henderson, Lyndall, Murphy, Bridget, Wengier, Lainie, Lassere, Marissa, Bendrups, Andrea and Buchbinder, Rachelle 2009, Stakeholder satisfaction with the Australian Rheumatology Association Database (ARAD), The patient : patient-centered outcomes research, vol. 2, no. 1, pp. 61-68.

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Title Stakeholder satisfaction with the Australian Rheumatology Association Database (ARAD)
Author(s) Briggs, Andrew M.
March, Lyn
Van Den Haak, Rosemarie
Hay, Nino
Henderson, Lyndall
Murphy, Bridget
Wengier, Lainie
Lassere, Marissa
Bendrups, Andrea
Buchbinder, Rachelle
Journal name The patient : patient-centered outcomes research
Volume number 2
Issue number 1
Start page 61
End page 68
Publisher Wolters Kluwer Health
Place of publication Chester, England
Publication date 2009-01
ISSN 1178-1653
1178-1661
Summary Background: The Australian Rheumatology Association Database (ARAD) is a voluntary national registry for monitoring the long-term benefits and safety of biological disease-modifying anti-rheumatic drugs (bDMARDs) for inflammatory arthritis. Both rheumatologists and patients contribute data to the ARAD.

Objective: To evaluate the satisfaction of patients and rheumatologists with the ARAD.

Methods
: Cross-sectional surveys were distributed to a random sample of 100 community-dwelling ARAD patients in 2007 and to rheumatologists attending the 2007 AustralianRheumatologyAssociation (ARA) annual scientific meeting.

Survey questions included items about the usefulness of the ARAD, workload for participants, frequency of questionnaires, and experience of contact with ARAD staff.

Results
: A total of 92.5% of patients perceived the ARAD as very important (scoring 9-10 on a numeric rating scale). Patients reported minimal difficulty in completing questionnaires, and 95.0% indicated that a 6-month interval between questionnaires was reasonable. Of responding rheumatologists, 32.3%, 62.1%, and 53.8% indicated that the ARAD was very important (scoring 8-10) with respect to clinical information, research, and the profession, respectively, while 68% of those participating in the ARAD reported that the workload required to enroll patients was manageable and 30% found it difficult or onerous.

Conclusion
: Key stakeholders in the ARAD view it as an important resource and are satisfied with its operations. Efforts will be directed towards assisting those rheumatologists who find the associated workload difficult and to improving the perceived clinical value of information available from the ARAD.

Language eng
Field of Research 110322 Rheumatology and Arthritis
HERDC Research category C1.1 Refereed article in a scholarly journal
Copyright notice ©2009, Adis Data Information
Persistent URL http://hdl.handle.net/10536/DRO/DU:30021879

Document type: Journal Article
Collection: School of Health and Social Development
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