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Not all roads lead to Rome - a review of quality of life measurement in diabetes

Speight, J., Reaney, M.D. and Barnard, K.D. 2009, Not all roads lead to Rome - a review of quality of life measurement in diabetes, Diabetic medicine, vol. 26, no. 4, pp. 315-327, doi: 10.1111/j.1464-5491.2009.02682.x.

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Title Not all roads lead to Rome - a review of quality of life measurement in diabetes
Author(s) Speight, J.ORCID iD for Speight, J.
Reaney, M.D.
Barnard, K.D.
Journal name Diabetic medicine
Volume number 26
Issue number 4
Start page 315
End page 327
Total pages 13
Publisher Wiley
Place of publication Chichester, England
Publication date 2009-04
ISSN 0742-3071
Keyword(s) diabetes
quality of life
Summary Aims Quality of life (QoL) is recognized widely as an important health outcome in diabetes, where the burden of selfmanagement places great demands on the individual. However, the concept of QoL remains ambiguous and poorly defined. The aim of our review is to clarify the measurement of QoL in terms of conceptualization, terminology and psychometric properties, to review the instruments that have been used most frequently to assess QoL in diabetes research and make recommendations for how to select measures appropriately.

Methods A systematic literature search was conducted to identify the ten measures most frequently used to assess QoL in diabetes research (including clinical trials) from 1995 to March 2008.

Results Six thousand and eight-five abstracts were identified and screened for instrument names. Of the ten instruments most frequently used to assess ‘QoL’, only three actually do so [i.e. the generic World Health Organization Quality of Life (WHOQOL) and the diabetes-specific Diabetes Quality of Life (DQOL) and Audit of Diabetes-Dependent Quality of Life (ADDQoL)]. Seven instruments more accurately measure health status [Short-Form 36 (SF-36), EuroQoL 5-Dimension (EQ-5D)], treatment satisfaction [Diabetes Treatment Satisfaction Questionnaire (DTSQ)] and psychological well-being [Beck Depression Inventory (BDI), Hospital Anxiety and Depression Scale (HADS), Well-Being Questionnaire (W-BQ), Problem Areas in Diabetes (PAID)].

Conclusions No single measure can suit every purpose or application but, when measures are selected inappropriately and data misinterpreted, any conclusions drawn are fundamentally flawed. If we value QoL as a therapeutic goal, we must ensure that the instruments we use are both valid and reliable. QoL assessment has the proven potential to identify ways in which treatments can be tailored to reduce the burden of diabetes. With careful consideration, appropriate measures can be selected and truly robust assessments undertaken successfully.
Language eng
DOI 10.1111/j.1464-5491.2009.02682.x
Field of Research 170199 Psychology not elsewhere classified
Socio Economic Objective 970117 Expanding Knowledge in Psychology and Cognitive Sciences
HERDC Research category C1.1 Refereed article in a scholarly journal
Copyright notice ©2009, Wiley
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Document type: Journal Article
Collection: School of Psychology
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