Patient perspective workshop : moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes

Kirwan, John R., Fries, James F., Hewlett, Sarah E., Osborne, Richard H., Newman, Stanton, Ciciriello, Sabina, van de Laar, Mart A., Dures, Emma, Minnock, Patricia, Heiberg, Turid, Sanderson, Tessa C., Flurey, Caroline A., Leong, Amy L., Montie, Pamela and Richards, Pam 2011, Patient perspective workshop : moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes, The journal of rheumatology, vol. 38, no. 8, pp. 1711-1715.

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Title Patient perspective workshop : moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes
Author(s) Kirwan, John R.
Fries, James F.
Hewlett, Sarah E.
Osborne, Richard H.
Newman, Stanton
Ciciriello, Sabina
van de Laar, Mart A.
Dures, Emma
Minnock, Patricia
Heiberg, Turid
Sanderson, Tessa C.
Flurey, Caroline A.
Leong, Amy L.
Montie, Pamela
Richards, Pam
Journal name The journal of rheumatology
Volume number 38
Issue number 8
Start page 1711
End page 1715
Publisher Journal of Rheumatology Publishing Co. Ltd.
Place of publication Toronto, Canada
Publication date 2011-08
ISSN 0315-162X
1499-2752
Keyword(s) patient reported outcomes
concensus development
clinical trials
Summary The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 brief introductory presentations elaborated the issues, and participants broke into discussion groups before reconvening to share insights, engage in a more general discussion of the issues, and vote on recommendations. Trade offs between using current imperfect measures and the long and complex process of developing new instruments were considered, together with the need for rigor in patient-reported outcome (PRO) instrument development. The main considerations for PRO instrument development were listed and a research agenda for action produced. As part of the agenda for action, it is recommended that researchers and patient partners work together to tackle these issues, and that OMERACT bring forward proposals for acceptable instrument development protocols that would meet an enhanced “Truth” statement in the OMERACT Filter.
Language eng
Field of Research 111717 Primary Health Care
Socio Economic Objective 920205 Health Education and Promotion
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2011, The Journal of Rheumatology
Persistent URL http://hdl.handle.net/10536/DRO/DU:30040691

Document type: Journal Article
Collection: School of Health and Social Development
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