Measurement issues in the evaluation of chronic disease self-management programs

Nolte, Sandra, Elsworth, Gerald, Newman, Stanton and Osborne, Richard H 2013, Measurement issues in the evaluation of chronic disease self-management programs, Quality of life research, vol. 22, no. 7, pp. 1655-1664, doi: 10.1007/s11136-012-0317-1.

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Title Measurement issues in the evaluation of chronic disease self-management programs
Author(s) Nolte, SandraORCID iD for Nolte, Sandra
Elsworth, GeraldORCID iD for Elsworth, Gerald
Newman, Stanton
Osborne, Richard H
Journal name Quality of life research
Volume number 22
Issue number 7
Start page 1655
End page 1664
Total pages 10
Publisher Springer
Place of publication Amsterdam, The Netherlands
Publication date 2013-09
ISSN 0962-9343
Keyword(s) chronic disease
patient education
program evaluation
outcomes assessment
quality of life
Summary Objectives: 
To provide an in-depth analysis of outcome measures used in the evaluation of chronic disease self-management programs consistent with the Stanford curricula.

Based on a systematic review on self-management programs, effect sizes derived from reported outcome measures are categorized according to the quality of life appraisal model developed by Schwartz and Rapkin which classifies outcomes from performance-based measures (e.g., clinical outcomes) to evaluation-based measures (e.g., emotional well-being).

The majority of outcomes assessed in self-management trials are based on evaluation-based methods. Overall, effects on knowledge—the only performance-based measure observed in selected trials—are generally medium to large. In contrast, substantially more inconsistent results are found for both perception- and evaluation-based measures that mostly range between nil and small positive effects.

Effectiveness of self-management interventions and resulting recommendations for health policy makers are most frequently derived from highly variable evaluation-based measures, that is, types of outcomes that potentially carry a substantial amount of measurement error and/or bias such as response shift. Therefore, decisions regarding the value and efficacy of chronic disease self-management programs need to be interpreted with care. More research, especially qualitative studies, is needed to unravel cognitive processes and the role of response shift bias in the measurement of change.
Language eng
DOI 10.1007/s11136-012-0317-1
Field of Research 111702 Aged Health Care
Socio Economic Objective 920204 Evaluation of Health Outcomes
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2013, Springer
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Created: Mon, 13 May 2013, 14:55:57 EST by Jane Moschetti

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