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Health-related quality of life and strain in caregivers of Australians with Parkinson’s disease : An observational study

Kelly, David H., McGinley, Jennifer L., Huxham, Frances E., Menz, Hylton B., Watts, Jennifer J., Iansek, Robert, Murphy, Anna T., Danoudis, Mary, Adair, Brook and Morris, Meg E. 2012, Health-related quality of life and strain in caregivers of Australians with Parkinson’s disease : An observational study, BMC neurology, vol. 12, Article No.57, pp. 1-7, doi: 10.1186/1471-2377-12-57.

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Title Health-related quality of life and strain in caregivers of Australians with Parkinson’s disease : An observational study
Author(s) Kelly, David H.
McGinley, Jennifer L.
Huxham, Frances E.
Menz, Hylton B.
Watts, Jennifer J.ORCID iD for Watts, Jennifer J. orcid.org/0000-0001-8095-8638
Iansek, Robert
Murphy, Anna T.
Danoudis, Mary
Adair, Brook
Morris, Meg E.
Journal name BMC neurology
Volume number 12
Season Article No.57
Start page 1
End page 7
Total pages 7
Publisher BioMed Central
Place of publication London, England
Publication date 2012-07-17
ISSN 1471-2369
1471-2377
Keyword(s) caregivers
Parkinsons' disease
Summary Background: The relationship between health-related quality of life (HRQoL) in people with Parkinson’s disease and their caregivers is little understood and any effects on caregiver strain remain unclear. This paper examines these relationships in an Australian sample.
Methods:
Using the generic EuroQol (EQ-5D) and disease-specific Parkinson’s Disease Questionnaire-39 Item (PDQ- 39), HRQoL was evaluated in a sample of 97 people with PD and their caregivers. Caregiver strain was assessed using the Modified Caregiver Strain Index. Associations were evaluated between: (i) caregiver and care-recipient HRQoL; (ii) caregiver HRQoL and caregiver strain, and; (iii) between caregiver strain and care-recipient HRQoL.
Results: No statistically significant relationships were found between caregiver and care-recipient HRQoL, or between caregiver HRQoL and caregiver strain. Although this Australian sample of caregivers experienced relatively good HRQoL and moderately low strain, a significant correlation was found between HRQoL of people with PD and caregiver strain (rho 0.43, p<.001).
Conclusion:
Poor HRQoL in people with PD is associated with higher strain in caregivers. Therapy interventions may target problems reported as most troublesome by people with PD, with potential to reduce strain on the caregiver
Language eng
DOI 10.1186/1471-2377-12-57
Field of Research 119999 Medical and Health Sciences not elsewhere classified
Socio Economic Objective 970111 Expanding Knowledge in the Medical and Health Sciences
HERDC Research category C1.1 Refereed article in a scholarly journal
Copyright notice ©2012, BioMed Central
Free to Read? Yes
Persistent URL http://hdl.handle.net/10536/DRO/DU:30054598

Document type: Journal Article
Collections: School of Health and Social Development
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.