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Quantifying the profile and progression of impairments, activity, participation, and quality of life in people with Parkinson disease : protocol for a prospective cohort study

Morris, Meg E., Watts, Jennifer J., Iansek, Robert, Jolley, Damien, Campbell, Donald, Murphy, Anna T. and Martin, Clarissa L. 2009, Quantifying the profile and progression of impairments, activity, participation, and quality of life in people with Parkinson disease : protocol for a prospective cohort study, BMC geriatrics, vol. 9, no. 1, Article number 2, pp. 1-6.

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Title Quantifying the profile and progression of impairments, activity, participation, and quality of life in people with Parkinson disease : protocol for a prospective cohort study
Author(s) Morris, Meg E.
Watts, Jennifer J.
Iansek, Robert
Jolley, Damien
Campbell, Donald
Murphy, Anna T.
Martin, Clarissa L.
Journal name BMC geriatrics
Volume number 9
Issue number 1
Season Article number 2
Start page 1
End page 6
Total pages 6
Publisher BioMed Central
Place of publication London, England
Publication date 2009
ISSN 1471-2318
Keyword(s) impairments
activity
participation
Parkinson's disease
Summary Background Despite the finding that Parkinson disease (PD) occurs in more than one in every 1000 people older than 60 years, there have been few attempts to quantify how deficits in impairments, activity, participation, and quality of life progress in this debilitating condition. It is unclear which tools are most appropriate for measuring change over time in PD.
Methods and design
This protocol describes a prospective analysis of changes in impairments, activity, participation, and quality of life over a 12 month period together with an economic analysis of costs associated with PD. One-hundred participants will be included, provided they have idiopathic PD rated I-IV on the modified Hoehn & Yahr (1967) scale and fulfil the inclusion criteria. The study aims to determine which clinical and economic measures best quantify the natural history and progression of PD in a sample of people receiving services from the Victorian Comprehensive Parkinson's Program, Australia. When the data become available, the results will be expressed as baseline scores and changes over 3 months and 12 months for impairment, activity, participation, and quality of life together with a cost analysis.
Discussion This study has the potential to identify baseline characteristics of PD for different Hoehn & Yahr stages, to determine the influence of disease duration on performance, and to calculate the costs associated with idiopathic PD. Valid clinical and economic measures for quantifying the natural history and progression of PD will also be identified.
Language eng
Field of Research 119999 Medical and Health Sciences not elsewhere classified
Socio Economic Objective 970111 Expanding Knowledge in the Medical and Health Sciences
HERDC Research category C1.1 Refereed article in a scholarly journal
Copyright notice ©2009, BioMed Central
Persistent URL http://hdl.handle.net/10536/DRO/DU:30054610

Document type: Journal Article
Collections: School of Health and Social Development
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.