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Information needs of family carers of people with diabetes at the end of life: a literature review

Dikkers, Marije F., Dunning, Trisha and Savage, Sally 2013, Information needs of family carers of people with diabetes at the end of life: a literature review, Journal of palliative medicine, vol. 16, no. 12, pp. 1617-1623, doi: 10.1089/jpm.2013.0265.

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Title Information needs of family carers of people with diabetes at the end of life: a literature review
Author(s) Dikkers, Marije F.
Dunning, TrishaORCID iD for Dunning, Trisha orcid.org/0000-0002-0284-1706
Savage, Sally
Journal name Journal of palliative medicine
Volume number 16
Issue number 12
Start page 1617
End page 1623
Total pages 7
Publisher Mary Ann Liebert
Place of publication New Rochelle, NY
Publication date 2013-12
ISSN 1096-6218
1557-7740
Keyword(s) diabetes
family carers
end of life
literature review
information needs
Summary Background:
Recent research identified the issue that family carers of people with diabetes at the end of life (EOL) did not receive sufficient information to enable them to help their relative manage their diabetes at the EOL.

Aim:
The aim of the current study was to undertake a literature review to identify the information needs of family carers of people with diabetes at the EOL.

Method:
A comprehensive review of the literature was conducted by searching the following databases: CINAHL, PubMed, PsychInfo, Scopus, and SocINDEX. The grey literature was also searched for papers relevant to the aim. All study designs were included. A content analysis of relevant papers was undertaken to identify themes.

Results:
Sixteen of the more than 300 papers identified addressed the information needs of family carers of people with diabetes at the EOL and were included in the review. Five key themes were identified from the papers reviewed: (1) performing diabetes care tasks, (2) focus of care, (3) blood glucose management, (4) EOL stages, and (5) involving patients and family carers in decisions about diabetes care. Most of the 16 papers represented the views of health professionals and focused on the need to provide information about the medical aspects of diabetes management.

Conclusions:The review suggests further research is needed to identify the information needs of family carers of people with diabetes at the EOL to enable interventions to be developed to support the family carers and meet their unique information needs.
Language eng
DOI 10.1089/jpm.2013.0265
Field of Research 111099 Nursing not elsewhere classified
Socio Economic Objective 920211 Palliative Care
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2013, Mary Ann Liebert
Persistent URL http://hdl.handle.net/10536/DRO/DU:30059609

Document type: Journal Article
Collections: School of Nursing and Midwifery
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.