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Reflections on doing inclusive research in the 'making life good in the community' study

Bigby,C and Frawley,P 2010, Reflections on doing inclusive research in the 'making life good in the community' study, Journal of intellectual and developmental disability, vol. 35, no. 2, pp. 53-61, doi: 10.3109/13668251003716425.

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Title Reflections on doing inclusive research in the 'making life good in the community' study
Author(s) Bigby,C
Frawley,PORCID iD for Frawley,P orcid.org/0000-0002-7643-4935
Journal name Journal of intellectual and developmental disability
Volume number 35
Issue number 2
Start page 53
End page 61
Total pages 9
Publisher Taylor & Francis
Place of publication London, Eng.
Publication date 2010
ISSN 1469-9532
Keyword(s) inclusive research
participatory research
self-advocacy
Summary BACKGROUND: The involvement of people with intellectual disability in research is framed as inclusive, denoting their active participation in its processes. However, questions are raised about ownership and control, genuineness of involvement, and the need for honest accounts to develop practice. Such issues are particularly pressing in Australia, where there is the absence of a strong self-advocacy movement to partner with academics or hold them to account. METHOD: Action research was used to reflect on and progressively refine the support provided by a research mentor to a co-researcher with intellectual disability employed on a large multimethod study. RESULTS AND CONCLUSIONS: Accepting the co-researcher's strengths and designing support on the job rather than teaching them to "pass" before venturing out in the field are important in ceding control. Support required for a co-researcher is more than practical and involves developing a relationship that can actively challenge views and foster reflection. Ownership of questions and disseminating of outcomes are hampered by contextual factors such as tender processes, short-term positions, and a failure to acknowledge the support required to present findings.
Language eng
DOI 10.3109/13668251003716425
Field of Research 110321 Rehabilitation and Therapy (excl Physiotherapy)
Socio Economic Objective 920206 Health Inequalities
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2010, Taylor & Francis
Persistent URL http://hdl.handle.net/10536/DRO/DU:30072283

Document type: Journal Article
Collection: School of Health and Social Development
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