Lung cancer: challenges and solutions for supportive care intervention research

Schofield, Penelope, Ugalde, Anna, Carey, Mariko, Mileshkin, Linda, Duffy, Mary, Ball, David and Aranda, Sanchia 2008, Lung cancer: challenges and solutions for supportive care intervention research, Palliative & supportive care, vol. 6, no. 3, pp. 281-287, doi: 10.1017/S1478951508000424.

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Title Lung cancer: challenges and solutions for supportive care intervention research
Author(s) Schofield, Penelope
Ugalde, AnnaORCID iD for Ugalde, Anna
Carey, Mariko
Mileshkin, Linda
Duffy, Mary
Ball, David
Aranda, Sanchia
Journal name Palliative & supportive care
Volume number 6
Issue number 3
Start page 281
End page 287
Total pages 7
Publisher Cambridge University Press
Place of publication Cambridge, Eng.
Publication date 2008-09
ISSN 1478-9515
Summary Lung cancer is the leading cause of cancer death. It is associated with a high level of morbidity, particularly fatigue, pain, breathlessness, and coughing. These symptoms can have a substantial impact on psychosocial functioning. It is critical to have effective interventions demonstrated to improve quality of life particularly for those with advanced disease. However there is a paucity of high quality intervention research to guide practice in this area. This article discusses the challenges in conducting supportive care research in this group, including the patient's level of literacy in English, poor performance status, rapidly fluctuating health status, and familial or professional “gate-keeping.” Many of these challenges can be overcome by broadening eligibility criteria, permitting some flexibility in relation to recruitment and data collection procedures, working closely with the treatment team, involving the patient's family, minimizing practical difficulties associated with intervention delivery, and reducing study burden in other ways, such as limiting the amount of data collected from the patient and shortening follow-up time intervals. We explore these potential solutions drawing on the experience of conducting a randomized controlled trial of a support intervention for people with lung cancer and their family.
Language eng
DOI 10.1017/S1478951508000424
Field of Research 1117 Public Health and Health Services
Socio Economic Objective 970111 Expanding Knowledge in the Medical and Health Sciences
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2008, Cambridge University Press
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