Development of a conceptual model of cancer caregiver health literacy

Yuen, Eva Yee-Nga, Dodson, Sarity, Batterham, Roy, Knight, Therese, Chirgwin, J and Livingston, Patricia 2016, Development of a conceptual model of cancer caregiver health literacy, European journal of cancer care, vol. 25, no. 2, pp. 294-306, doi: 10.1111/ecc.12284.

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Title Development of a conceptual model of cancer caregiver health literacy
Author(s) Yuen, Eva Yee-Nga
Dodson, Sarity
Batterham, RoyORCID iD for Batterham, Roy
Knight, ThereseORCID iD for Knight, Therese
Chirgwin, J
Livingston, PatriciaORCID iD for Livingston, Patricia
Journal name European journal of cancer care
Volume number 25
Issue number 2
Start page 294
End page 306
Total pages 13
Publisher Wiley
Place of publication London, Eng.
Publication date 2016-03-01
ISSN 0961-5423
Keyword(s) cancer
concept mapping
conceptual model
health literacy
Science & Technology
Life Sciences & Biomedicine
Health Care Sciences & Services
Summary Caregivers play a vital role in caring for people diagnosed with cancer. However, little is understood about caregivers' capacity to find, understand, appraise and use information to improve health outcomes. The study aimed to develop a conceptual model that describes the elements of cancer caregiver health literacy. Six concept mapping workshops were conducted with 13 caregivers, 13 people with cancer and 11 healthcare providers/policymakers. An iterative, mixed methods approach was used to analyse and synthesise workshop data and to generate the conceptual model. Six major themes and 17 subthemes were identified from 279 statements generated by participants during concept mapping workshops. Major themes included: access to information, understanding of information, relationship with healthcare providers, relationship with the care recipient, managing challenges of caregiving and support systems. The study extends conceptualisations of health literacy by identifying factors specific to caregiving within the cancer context. The findings demonstrate that caregiver health literacy is multidimensional, includes a broad range of individual and interpersonal elements, and is influenced by broader healthcare system and community factors. These results provide guidance for the development of: caregiver health literacy measurement tools; strategies for improving health service delivery, and; interventions to improve caregiver health literacy.
Language eng
DOI 10.1111/ecc.12284
Field of Research 111712 Health Promotion
1110 Nursing
1112 Oncology And Carcinogenesis
1117 Public Health And Health Services
Socio Economic Objective 920499 Public Health (excl. Specific Population Health) not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2015, Wiley
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