Managing information and knowledge within maternity services: privacy and consent issues

Baskaran, Vikraman, Davis, Kim, Bali, Rajeev K., Naguib, Raouf N. G. and Wickramasinghe, Nilmini 2013, Managing information and knowledge within maternity services: privacy and consent issues, Informatics for health and social care, vol. 38, no. 3, pp. 196-210, doi: 10.3109/17538157.2012.735732.

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Title Managing information and knowledge within maternity services: privacy and consent issues
Author(s) Baskaran, Vikraman
Davis, Kim
Bali, Rajeev K.
Naguib, Raouf N. G.
Wickramasinghe, NilminiORCID iD for Wickramasinghe, Nilmini
Journal name Informatics for health and social care
Volume number 38
Issue number 3
Start page 196
End page 210
Total pages 15
Publisher Taylor & Francis
Place of publication London, Eng.
Publication date 2013-09
ISSN 1753-8157
Keyword(s) Computer Security
Electronic Health Records
Health Information Management
Hospitals, Maternity
Information Dissemination
Informed Consent
State Medicine
Summary OBJECTIVE: Electronic Patient Records have improved vastly the quality and efficiency of care delivered. However, the formation of single demographic database and the ease of electronic information sharing give rise to many concerns including issues of consent, by whom and how data are accessed and used. This paper examines the organizational and socio-technical issues related to privacy, confidentiality and security when employing electronic records within a maternity service hospital in England.
METHODS: A preliminary questionnaire was administered (n  =  52), in total, 24 responses were received. Sixteen responses were from personnel in the information technology department, 5 from health information department and 3 from midwifery managers. This was followed by a semi-structured interview with representatives from the clinical and technological side.
RESULTS: A number of issues related to information governance (IG) have been identified, especially breaches on sharing personal information without consent from the patients have been identified as one immediate challenge that needs to be fixed.
CONCLUSION: There is an immediate need for more robust, realistic, built-in accountability both locally and nationally on data sharing. A culture of ownership and strict adherence to IG principles is paramount. Focused training in the area of data, information and knowledge sharing will bring in a balance of legitimate usage against the individual's rights to confidentiality and privacy.
Language eng
DOI 10.3109/17538157.2012.735732
Field of Research 080699 Information Systems not elsewhere classified
0807 Library And Information Studies
0806 Information Systems
Socio Economic Objective 920299 Health and Support Services not elsewhere classified
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2013, Informa UK Ltd
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Document type: Journal Article
Collection: Faculty of Health
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