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The health profile of people living with Parkinson's Disease managed in a comprehensive care setting

Morris, Meg E., Murphy, Anna T., Watts, Jennifer J., Jolley, Damien, Campbell, Donald, Soh, Sze-Ee, Said, Catherine M. and Iansek, Robert 2015, The health profile of people living with Parkinson's Disease managed in a comprehensive care setting, Journal of aging science, vol. 3, no. 2, pp. 1-7, doi: 10.4172/2329-8847.1000135.

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Title The health profile of people living with Parkinson's Disease managed in a comprehensive care setting
Author(s) Morris, Meg E.
Murphy, Anna T.
Watts, Jennifer J.ORCID iD for Watts, Jennifer J. orcid.org/0000-0001-8095-8638
Jolley, Damien
Campbell, Donald
Soh, Sze-Ee
Said, Catherine M.
Iansek, Robert
Journal name Journal of aging science
Volume number 3
Issue number 2
Start page 1
End page 7
Total pages 7
Publisher Omics Publishing Group
Place of publication Los Angeles, Calif.
Publication date 2015-06-22
ISSN 2329-8847
Summary Background: Globally there are few reports of the impairments, disabilities and medications used in people living with idiopathic Parkinson’s disease. Caregiver characteristics and caregiver burden have seldom been reported. We examined the health status in a large cohort of people living with Parkinson’s disease and their caregivers managed in a comprehensive health care setting.

Methods/Design: A prospective, cross sectional analysis of impairments, disabilities and Parkinson’s disease medication use was conducted in a sample of 100 people with Parkinson’s disease rated I-IV on the modified Hoehn & Yahr scale. Participants were recruited from the Victorian Comprehensive Parkinson Program in Melbourne, Australia. Their caregivers were invited to provide their views on the burden of care, services provided and support received.

Results: The severity of impairments and disabilities was strongly associated with disease duration (mean of 5.5 years). Those with long standing disease or more severe disease also used more Parkinson’s disease medications and participated in fewer social roles than people who were newly diagnosed or mildly affected. The severity of impairments was strongly correlated with limitations in performing activities of daily living. Limitations in performing daily activities were also found to be a significant contributing factor for health-related quality of life (PDQ-39 SI β=0.55, p=0.000; EQ-5D SI β=0.43, p=0.001). People with Parkinson’s disease lived at home with relatives. The average caregiver was a spouse or child providing approximately 3.5 hours of care per day, with the capacity to provide 9.4 hours per day and had provided care for four years. Additional support was high (63%) for 2.5 hours per day.

Conclusion: The comprehensive care setting of this cohort describes a relatively benign condition despite a wide range of disease duration and severity. This report provides a baseline with which to compare other delivery models.
Language eng
DOI 10.4172/2329-8847.1000135
Field of Research 111799 Public Health and Health Services not elsewhere classified
Socio Economic Objective 920299 Health and Support Services not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2015, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30079189

Document type: Journal Article
Collections: School of Health and Social Development
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.