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Understanding organ donation in the collaborative era: a qualitative study of staff and family experiences

Thomas, S. L., Milnes, S. and Komesaroff, P. A. 2009, Understanding organ donation in the collaborative era: a qualitative study of staff and family experiences, Internal medicine journal, vol. 39, no. 9, pp. 588-594, doi: 10.1111/j.1445-5994.2008.01826.x.

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Title Understanding organ donation in the collaborative era: a qualitative study of staff and family experiences
Author(s) Thomas, S. L.ORCID iD for Thomas, S. L. orcid.org/0000-0003-1427-7775
Milnes, S.
Komesaroff, P. A.
Journal name Internal medicine journal
Volume number 39
Issue number 9
Start page 588
End page 594
Total pages 7
Publisher Wiley
Place of publication London, Eng.
Publication date 2009-09
ISSN 1444-0903
1445-5994
Keyword(s) Science & Technology
Life Sciences & Biomedicine
Medicine, General & Internal
General & Internal Medicine
organ donation
intensive care unit staff experience
National Organ Donation Collaborative
family experience
qualitative study
DECISION
ATTITUDES
RELATIVES
CONSENT
DONOR
Summary BACKGROUND: Despite the success of the Breakthrough Collaborative Methodology (BCM) in increasing organ donation rates there has been little published evidence on the effect of the BCM on the wider attitudes and experiences of those involved in organ donation. This study sought to identify whether the National Organ Donation Collaborative in Australia had any additional influence on improving the experiences of staff and family members in the organ donation process. METHODS: IN-depth qualitative interviews with 17 family members from 13 families who had agreed to the organ donation of a deceased relative and 25 nurses and intensive care specialists at the Alfred Hospital, Melbourne, Victoria were carried out. RESULTS: The key factor in family members' decision to donate was prior knowledge of the deceased's donation wish. Although most family members did not regret their decision to donate, many were deeply dissatistified and, at times, confused by the technical and administrative nature of the donation process. Most staff members commented that the key community message about donation should be to encourage people to discuss donation rather than urging people to sign donor registers. CONCLUSION: This study identified valuable insights into the processes by which family members and intensive care unit staff deal with the actual processes of donation. Findings suggest that the process for families is far more complex than a simple agreement or refusal to donate. This study suggests that we should not assume that 'rates' of donation in Australia would increase merely through administrative programmes or marketing campaigns.
Language eng
DOI 10.1111/j.1445-5994.2008.01826.x
Field of Research 111799 Public Health and Health Services not elsewhere classified
Socio Economic Objective 920499 Public Health (excl. Specific Population Health) not elsewhere classified
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2009, The Authors
Persistent URL http://hdl.handle.net/10536/DRO/DU:30079254

Document type: Journal Article
Collection: School of Health and Social Development
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