The burden of neck pain: its meaning for persons with neck pain and healthcare providers, explored by concept mapping

van Randeraad-van der Zee, Carlijn H., Beurskens, Anna J. H. M., Swinkels, Raymond A. H. M., Pool, Jan J. M., Batterham, Roy W., Osborne, Richard H. and de Vet, Henrica C. W. 2016, The burden of neck pain: its meaning for persons with neck pain and healthcare providers, explored by concept mapping, Quality of life research, vol. 25, no. 5, pp. 1219-1225, doi: 10.1007/s11136-015-1149-6.

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Title The burden of neck pain: its meaning for persons with neck pain and healthcare providers, explored by concept mapping
Author(s) van Randeraad-van der Zee, Carlijn H.
Beurskens, Anna J. H. M.
Swinkels, Raymond A. H. M.
Pool, Jan J. M.
Batterham, Roy W.ORCID iD for Batterham, Roy W.
Osborne, Richard H.ORCID iD for Osborne, Richard H.
de Vet, Henrica C. W.
Journal name Quality of life research
Volume number 25
Issue number 5
Start page 1219
End page 1225
Total pages 7
Publisher Springer
Place of publication Berlin, Germany
Publication date 2016-05
ISSN 1573-2649
Keyword(s) Burden of neck pain
Cluster analysis
Concept mapping
Content validity
Mind map
Multidimensional scaling
Patient-reported outcomes
Summary PURPOSE: To empirically define the concept of burden of neck pain. The lack of a clear understanding of this construct from the perspective of persons with neck pain and care providers hampers adequate measurement of this burden. An additional aim was to compare the conceptual model obtained with the frequently used Neck Disability Index (NDI). METHODS: Concept mapping, combining qualitative (nominal group technique and group consensus) and quantitative research methods (cluster analysis and multidimensional scaling), was applied to groups of persons with neck pain (n = 3) and professionals treating persons with neck pain (n = 2). Group members generated statements, which were organized into concept maps. Group members achieved consensus about the number and description of domains and the researchers then generated an overall mind map covering the full breadth of the burden of neck pain. RESULTS: Concept mapping revealed 12 domains of burden of neck pain: impaired mobility neck, neck pain, fatigue/concentration, physical complaints, psychological aspects/consequences, activities of daily living, social participation, financial consequences, difficult to treat/difficult to diagnose, difference of opinion with care providers, incomprehension by social environment, and how person with neck pain deal with complaints. All ten items of the NDI could be linked to the mind map, but the NDI measures only part of the burden of neck pain. CONCLUSION: This study revealed the relevant domains for the burden of neck pain from the viewpoints of persons with neck pain and their care providers. These results can guide the identification of existing measurements instruments for each domain or the development of new ones to measure the burden of neck pain.
Language eng
DOI 10.1007/s11136-015-1149-6
Field of Research 1117 Public Health and Health Services
Socio Economic Objective 920499 Public Health (excl. Specific Population Health) not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, Springer
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Document type: Journal Article
Collections: Faculty of Health
School of Health and Social Development
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