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Involving people with diabetes and the wider community in diabetes research: a realist review protocol

Harris, Janet, Graue, Marit, Dunning, Trisha, Haltbakk, Johannes, Austrheim, Gunhild, Skille, Nina, Rokne, Berit and Kirkevold, Marit 2015, Involving people with diabetes and the wider community in diabetes research: a realist review protocol, Systematic reviews, vol. 4, no. 1, pp. 1-7, doi: 10.1186/s13643-015-0127-y.

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Title Involving people with diabetes and the wider community in diabetes research: a realist review protocol
Author(s) Harris, Janet
Graue, Marit
Dunning, TrishaORCID iD for Dunning, Trisha orcid.org/0000-0002-0284-1706
Haltbakk, Johannes
Austrheim, Gunhild
Skille, Nina
Rokne, Berit
Kirkevold, Marit
Journal name Systematic reviews
Volume number 4
Issue number 1
Start page 1
End page 7
Total pages 7
Publisher BioMed Central
Place of publication London, Eng.
Publication date 2015-11-04
ISSN 2046-4053
Keyword(s) diabetes mellitus
health services research
consumer participation
patient participation
community-based participatory research
realist review
Summary BACKGROUND: Patient and public involvement in diabetes research is now actively encouraged in different countries because it is believed that involving people with experience of the condition will improve the quality and relevance of the research. However, reviews of patient involvement have noted that inadequate resources, patients' and communities' lack of research knowledge, and researchers' lack of skills to involve patients and communities in research may present significant contextual barriers. Little is known about the extent of patient/community involvement in designing or delivering interventions for people with diabetes. A realist review of involvement will contribute to assessing when, how and why involvement works, or does not work, to produce better diabetes interventions.

METHODS/DESIGN: This protocol outlines the process for conducting a realist review to map how patients and the public have been involved in diabetes research to date. The review questions ask the following: How have people with diabetes and the wider community been involved in diabetes research? What are the characteristics of the process that appear to explain the relative success or failure of involvement? How has involvement (or lack of involvement) in diabetes research influenced the development and conduct of diabetes research? The degree of support in the surrounding context will be assessed alongside the ways in which people interact in different settings to identify patterns of interaction between context, mechanisms and outcomes in different research projects. The level and extent of the involvement will be described for each stage of the research project. The descriptions will be critically reviewed by the people with diabetes on our review team. In addition, researchers and patients in diabetes research will be asked to comment. Information from researcher-patient experiences and documents will be compared to theories of involvement across a range of disciplines to create a mid-range theory describing how involvement (or lack of involvement) in diabetes research influences the development and conduct of diabetes research.
Language eng
DOI 10.1186/s13643-015-0127-y
Field of Research 111099 Nursing not elsewhere classified
Socio Economic Objective 920210 Nursing
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2015, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30079947

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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.