The missing evidence: a systematic review of patients' experiences of adverse events in health care

Harrison, Reema, Walton, Merrilyn, Manias, Elizabeth, Smith-Merry, Jennifer, Kelly, Patrick, Iedema, Rick and Robinson, Lauren 2015, The missing evidence: a systematic review of patients' experiences of adverse events in health care, International journal for quality in health care, vol. 27, no. 6, pp. 424-442, doi: 10.1093/intqhc/mzv075.

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Title The missing evidence: a systematic review of patients' experiences of adverse events in health care
Author(s) Harrison, Reema
Walton, Merrilyn
Manias, ElizabethORCID iD for Manias, Elizabeth
Smith-Merry, Jennifer
Kelly, Patrick
Iedema, Rick
Robinson, Lauren
Journal name International journal for quality in health care
Volume number 27
Issue number 6
Start page 424
End page 442
Total pages 19
Publisher Oxford University Press
Place of publication Oxford, Eng.
Publication date 2015-12
ISSN 1464-3677
Keyword(s) health services research
hospital incident reporting
medical error
patient participation
patient safety
quality of health care
Summary PURPOSE: Preventable patient harm due to adverse events (AEs) is a significant health problem today facing contemporary health care. Knowledge of patients' experiences of AEs is critical to improving health care safety and quality. A systematic review of studies of patients' experiences of AEs was conducted to report their experiences, knowledge gaps and any challenges encountered when capturing patient experience data. DATA SOURCES: Key words, synonyms and subject headings were used to search eight electronic databases from January 2000 to February 2015, in addition to hand-searching of reference lists and relevant journals. STUDY SELECTION: Titles and abstracts of publications were screened by two reviewers and checked by a third. Full-text articles were screened against the eligibility criteria. DATA EXTRACTION: Data on design, methods and key findings were extracted and collated. RESULTS: Thirty-three publications demonstrated patients identifying a range of problems in their care; most commonly identified were medication errors, communication and coordination of care problems. Patients' income, education, health burden and marital status influence likelihood of reporting. Patients report distress after an AE, often exacerbated by receiving inadequate information about the cause. Investigating patients' experiences is hampered by the lack of large representative patient samples, data over sufficient time periods and varying definitions of an AE. CONCLUSION: Despite the emergence of policy initiatives to enhance patient engagement, few studies report patients' experiences of AEs. This information must be routinely captured and utilized to develop effective, patient-centred and system-wide policies to minimize and manage AEs.
Language eng
DOI 10.1093/intqhc/mzv075
Field of Research 11 Medical And Health Sciences
17 Psychology And Cognitive Sciences
111099 Nursing not elsewhere classified
Socio Economic Objective 920210 Nursing
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2015, Oxford University Press
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