Uptake of a newly implemented advance care planning program in a dementia diagnostic service

Lewis, Matthew, Rand, Elizabeth, Mullaly, Elizabeth, Mellor, David and Macfarlane, Stephen 2015, Uptake of a newly implemented advance care planning program in a dementia diagnostic service, Age and ageing, vol. 44, no. 6, pp. 1045-1049, doi: 10.1093/ageing/afv138.

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Title Uptake of a newly implemented advance care planning program in a dementia diagnostic service
Author(s) Lewis, Matthew
Rand, Elizabeth
Mullaly, Elizabeth
Mellor, DavidORCID iD for Mellor, David orcid.org/0000-0001-5007-5906
Macfarlane, Stephen
Journal name Age and ageing
Volume number 44
Issue number 6
Start page 1045
End page 1049
Total pages 5
Publisher Oxford Journals
Place of publication London, Eng.
Publication date 2015
ISSN 1468-2834
Keyword(s) Respecting Patient Choices
advance care planning
mild cognitive impairment
older people
Science & Technology
Life Sciences & Biomedicine
Geriatrics & Gerontology
Summary BACKGROUND: advance care planning (ACP) provides a framework for discussion and documentation of future care preferences when a person loses cognitive capacity. It can assist people in the early stages of dementia to document their preferences for care at later stages of the illness. METHOD: a three-stage project introduced ACP to clients with mild cognitive impairment (MCI) or recently diagnosed dementia and their families through a specialist memory clinic. Over 8 months, all English-speaking clients (n = 97) and carers (n = 92) were mailed a survey assessing completed documentation for future care; understanding of the principles of ACP and willingness to get further information about ACP (Stage 1). Participants wanting more information were invited to a seminar introducing the ACP program and service (Stage 2). Participants wanting to complete ACP documentation could make an appointment with the ACP clinicians (Stage 3). RESULTS: forty-eight (52.2%) carers and 34 clients (35.1%) responded to the survey. Most clients (62.1%) and carers (79.1%) expressed interest in ACP, and 78.6% of clients and 63.6% of carers believed that clients should be involved in their future medical decisions. Nine clients (26.5%; diagnoses: MCI = 5; AD = 3; mixed dementia = 1) and 9 carers (18.8%) attended the seminars, and 2/48 (4%) carers and 3/34 (8.8%) clients (diagnoses: MCI = 2; AD = 1) completed ACP. CONCLUSION: despite initial interest, ACP completion was low. The reasons for this need to be determined. Approaches that may better meet the needs of people newly diagnosed with MCI and dementia are discussed.
Language eng
DOI 10.1093/ageing/afv138
Field of Research 170106 Health, Clinical and Counselling Psychology
1103 Clinical Sciences
1701 Psychology
1117 Public Health And Health Services
Socio Economic Objective 920299 Health and Support Services not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2015, The Authors
Persistent URL http://hdl.handle.net/10536/DRO/DU:30080468

Document type: Journal Article
Collections: School of Psychology
Centre for Mental Health and Wellbeing Research
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