Experiences of prenatal diagnosis and decision-making about termination of pregnancy: a qualitative study

Hodgson, Jan, Pitt, Penelope, Metcalfe, Sylvia, Halliday, Jane, Menezes, Melody, Fisher, Jane, Hickerton, Chriselle, Petersen, Kerry and McClaren, Belinda 2016, Experiences of prenatal diagnosis and decision-making about termination of pregnancy: a qualitative study, Australian and New Zealand journal of obstetrics and gynaecology, vol. 56, no. 6, pp. 605-613, doi: 10.1111/ajo.12501.

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Title Experiences of prenatal diagnosis and decision-making about termination of pregnancy: a qualitative study
Author(s) Hodgson, Jan
Pitt, PenelopeORCID iD for Pitt, Penelope orcid.org/0000-0002-4869-836X
Metcalfe, Sylvia
Halliday, Jane
Menezes, Melody
Fisher, Jane
Hickerton, Chriselle
Petersen, Kerry
McClaren, Belinda
Journal name Australian and New Zealand journal of obstetrics and gynaecology
Volume number 56
Issue number 6
Start page 605
End page 613
Total pages 9
Publisher Wiley
Place of publication Richmond, Vic.
Publication date 2016-12
ISSN 1479-828X
Summary Background : Advances in genetic technologies and ultrasound screening techniques have increased the ability to predict and diagnose congenital anomalies during pregnancy. As a result more prospective parents than ever before will receive a prenatal diagnosis of a fetal abnormality. Little is known about how Australian women and men experience receiving a prenatal diagnosis and how they make their decision about whether or not to continue the pregnancy.
Aims : This qualitative study aims to describe parental experiences and examine how best to provide support after a prenatal diagnosis.
Results : Individual in-depth interviews were conducted with 102 women and men approximately six weeks post-diagnosis of fetal abnormality. Data were elicited using a narrative, chronological approach and women (n = 75) and a sample of male partners (n = 27) were separately interviewed. Thematic analysis, involving a rigorous process of qualitative coding, enabled iterative development and validation of emergent themes. Participants identified that the shock of the diagnosis can be lessened when good care is delivered, by provision of: clear, accurate and respectful communication; empathic, non-judgemental, professional support; timely access to further testing and appointments; seamless interactions with services and administration; appropriate choices about invasive testing; acknowledgment of the enormity and unexpected nature of the diagnosis, and of the subsequent decision-making challenges; and discussion of the myriad feelings likely to emerge throughout the process.
Conclusions : This study has demonstrated the importance of providing timely access to accurate information and supportive, non-judgemental care for women and their partners following prenatal diagnosis of a fetal abnormality.
Language eng
DOI 10.1111/ajo.12501
Field of Research 1114 Paediatrics And Reproductive Medicine
1117 Public Health And Health Services
Socio Economic Objective 0 Not Applicable
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, The Royal Australian and New Zealand College of Obstetricians and Gynaecologists
Persistent URL http://hdl.handle.net/10536/DRO/DU:30085049

Document type: Journal Article
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School of Education
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