Two studies on Twitter networks and tweet content in relation to Amyotrophic Lateral Sclerosis (ALS): conversation, information, and ‘Diary of a Daily Life’ Hemsley, Bronwyn and Palmer, Stuart 2016, Two studies on Twitter networks and tweet content in relation to Amyotrophic Lateral Sclerosis (ALS): conversation, information, and ‘Diary of a Daily Life’. In Georgiou, Andrew, Schaper, Louise K. and Whetton, Sue (ed), Digital health innovation for consumers, clinicians, connectivity and community, IOS Press, Amsterdam, The Netherlands, pp.41-47, doi: 10.3233/978-1-61499-666-8-41. Attached Files Name Description MIMEType Size Downloads palmer-twostudieson-2016.pdf Published version application/pdf 1.32MB 339 Title Two studies on Twitter networks and tweet content in relation to Amyotrophic Lateral Sclerosis (ALS): conversation, information, and ‘Diary of a Daily Life’ Author(s) Hemsley, Bronwyn Palmer, Stuart orcid.org/0000-0002-2517-0597 Title of book Digital health innovation for consumers, clinicians, connectivity and community Editor(s) Georgiou, Andrew Schaper, Louise K. Whetton, Sue Publication date 2016 Series Studies in health technology and informatics Chapter number 7 Total chapters 20 Start page 41 End page 47 Total pages 7 Publisher IOS Press Place of Publication Amsterdam, The Netherlands Keyword(s) Twitter tweet content Amyotrophic Lateral Sclerosis Motor Neurone Disease severe communication disability Twitter research Summary To date, there is no research examining how adults with Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND) and severe communication disability use Twitter, nor the use of Twitter in relation to ALS/MND beyond its use for fundraising and raising awareness. In this paper we (a) outline a rationale for the use of Twitter as a method of communication and information exchange for adults with ALS/MND, (b) detail multiple qualitative and quantitative methods used to analyse Twitter networks and tweet content in the our studies, and (c) present the results of two studies designed to provide insights on the use of Twitter by an adult with ALS/MND and by #ALS and #MND hashtag communities in Twitter. We will also discuss findings across the studies, implications for health service providers in Twitter, and directions for future Twitter research in relation to ALS/MND. ISBN 9781614996651 9781614996668 Language eng DOI 10.3233/978-1-61499-666-8-41 Field of Research 110904 Neurology and Neuromuscular Diseases 170204 Linguistic Processes (incl Speech Production and Comprehension) 080709 Social and Community Informatics Socio Economic Objective 920201 Allied Health Therapies (excl. Mental Health Services) HERDC Research category B1 Book chapter ERA Research output type B Book chapter Copyright notice ©2016, The Authors and IOS Press Free to Read? Yes Use Rights Persistent URL http://hdl.handle.net/10536/DRO/DU:30085068 Document type: Book Chapter Collections: Faculty of Science, Engineering and Built Environment Open Access Collection Related Links Link Description Connect to published version Go to link with your DU access privileges     Unless expressly stated otherwise, the copyright for items in DRO is owned by the author, with all rights reserved. Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au. Versions Version Filter Type Fri, 22 Jul 2016, 20:06:42 EST Fri, 22 Jul 2016, 20:07:23 EST Sat, 23 Jul 2016, 05:01:44 EST Fri, 26 Aug 2016, 17:34:03 EST Mon, 05 Sep 2016, 17:53:12 EST Thu, 29 Sep 2016, 14:34:32 EST Thu, 29 Sep 2016, 14:51:05 EST Fri, 21 Oct 2016, 05:09:36 EST Mon, 24 Oct 2016, 10:22:09 EST Mon, 24 Oct 2016, 10:28:36 EST Mon, 24 Oct 2016, 10:30:15 EST Tue, 25 Oct 2016, 13:18:34 EST Tue, 25 Oct 2016, 13:55:21 EST Wed, 11 Jan 2017, 09:51:07 EST Fri, 07 Sep 2018, 12:17:05 EST Filtered Full Citation counts:   Cited 12 times in TR Web of Science Cited 13 times in Scopus Search Google Scholar Access Statistics: 1067 Abstract Views, 341 File Downloads  -  Detailed Statistics Created: Thu, 29 Sep 2016, 14:51:05 EST

Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.