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Diabetes MILES Youth-Australia: methods and sample characteristics of a national survey of the psychological aspects of living with type 1 diabetes in Australian youth and their parents

Hagger, Virginia, Trawley, Steven, Hendrieckx, Christel, Browne, Jessica L., Cameron, Fergus, Pouwer, Frans, Skinner, Timothy and Speight, Jane 2016, Diabetes MILES Youth-Australia: methods and sample characteristics of a national survey of the psychological aspects of living with type 1 diabetes in Australian youth and their parents, BMC psychology, vol. 4, pp. 1-13, doi: 10.1186/s40359-016-0149-9.

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Title Diabetes MILES Youth-Australia: methods and sample characteristics of a national survey of the psychological aspects of living with type 1 diabetes in Australian youth and their parents
Author(s) Hagger, VirginiaORCID iD for Hagger, Virginia orcid.org/0000-0003-3845-2814
Trawley, StevenORCID iD for Trawley, Steven orcid.org/0000-0002-0917-730X
Hendrieckx, ChristelORCID iD for Hendrieckx, Christel orcid.org/0000-0002-0075-828X
Browne, Jessica L.ORCID iD for Browne, Jessica L. orcid.org/0000-0001-7294-8114
Cameron, Fergus
Pouwer, Frans
Skinner, Timothy
Speight, JaneORCID iD for Speight, Jane orcid.org/0000-0002-1204-6896
Journal name BMC psychology
Volume number 4
Article ID 42
Start page 1
End page 13
Total pages 13
Publisher BioMed Central
Place of publication London, Eng.
Publication date 2016-08-12
ISSN 2050-7283
Keyword(s) Adolescents
Depression
Diabetes distress
National survey
Psychological well-being
Quality of life
Self-care
Type 1 diabetes
Adolescent
Australia
Child
Diabetes Mellitus, Type 1
Female
Health Services Accessibility
Health Surveys
Humans
Male
Parent-Child Relations
Parents
Self Care
Summary BACKGROUND: Type 1 diabetes is a complex and demanding condition, which places a substantial behavioural and psychological burden on young people and their families. Around one-third of adolescents with type 1 diabetes need mental health support. Parents of a child with type 1 diabetes are also at increased risk of psychological distress. A better understanding of the motivators, behaviours and psychological well-being of young people with diabetes and their parents will inform improvement of resources for supporting self-management and reducing the burden of diabetes. The Diabetes MILES (Management and Impact for Long-term Empowerment and Success) Youth-Australia Study is the first large-scale, national survey of the impact of diabetes on the psychosocial outcomes of Australian adolescents with type 1 diabetes and their parents.

METHODS/DESIGN: The survey was web-based to enable a large-scale, national survey to be undertaken. Recruitment involved multiple strategies: postal invitations; articles in consumer magazines; advertising in diabetes clinics; social media (e.g. Facebook, Twitter). Recruitment began in August 2014 and the survey was available online for approximately 8 weeks. A total of 781 young people (aged 10-19 years) with type 1 diabetes and 826 parents completed the survey. Both genders, all ages within the relevant range, and all Australian states and territories were represented, although compared to the general Australian population of youth with type 1 diabetes, respondents were from a relatively advantaged socioeconomic background.

DISCUSSION: The online survey format was a successful and economical approach for engaging young people with type 1 diabetes and their parents. This rich quantitative and qualitative dataset focuses not only on diabetes management and healthcare access but also on important psychosocial factors (e.g. social support, general emotional well-being, and diabetes distress). Analysis of the Diabetes MILES Youth-Australia Study data is ongoing, and will provide further insights into the psychosocial problems facing young people with type 1 diabetes and their parents. These will inform future research and support services to meet the needs of young Australians with type 1 diabetes and their families.
Language eng
DOI 10.1186/s40359-016-0149-9
Field of Research 170106 Health, Clinical and Counselling Psychology
Socio Economic Objective 920104 Diabetes
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30086272

Document type: Journal Article
Collections: Faculty of Health
School of Psychology
Open Access Collection
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.