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Identifying and integrating patient and caregiver perspectives for clinical practice guidelines on the screening and management of infectious microorganisms in hemodialysis units

Miller, Hilary M., Tong, Allison, Tunnicliffe, David J., Campbell, Denise, Pinter, Jule, Commons, Robert J., Athan, Eugene, Craig, Jonathan C., Gilroy, Nicole, Green, Julianne, Henderson, Belinda, Howell, Martin, Stuart, Rhonda L., van Eps, Carolyn, Wong, Muh Geot, de Zoysa, Janak and Jardine, Meg J. 2017, Identifying and integrating patient and caregiver perspectives for clinical practice guidelines on the screening and management of infectious microorganisms in hemodialysis units, Hemodialysis international, vol. 21, no. 2, pp. 213-223, doi: 10.1111/hdi.12457.

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Title Identifying and integrating patient and caregiver perspectives for clinical practice guidelines on the screening and management of infectious microorganisms in hemodialysis units
Author(s) Miller, Hilary M.
Tong, Allison
Tunnicliffe, David J.
Campbell, Denise
Pinter, Jule
Commons, Robert J.
Athan, EugeneORCID iD for Athan, Eugene orcid.org/0000-0001-9838-6471
Craig, Jonathan C.
Gilroy, Nicole
Green, Julianne
Henderson, Belinda
Howell, Martin
Stuart, Rhonda L.
van Eps, Carolyn
Wong, Muh Geot
de Zoysa, Janak
Jardine, Meg J.
Journal name Hemodialysis international
Volume number 21
Issue number 2
Start page 213
End page 223
Total pages 11
Publisher Wiley-Blackwell
Place of publication Hoboken, N.J.
Publication date 2017-04
ISSN 1492-7535
1542-4758
Keyword(s) practice guideline
consumer participation
cross-infection
patient satisfaction
renal dialysis
Science & Technology
Life Sciences & Biomedicine
Urology & Nephrology
BLOOD-STREAM INFECTION
DIALYSIS CARE
PREVENTION
PARTICIPATION
QUALITY
Summary Introduction: The integration of patient and caregiver input into guideline development can help to ensure that clinical care addresses patient expectations, priorities, and needs. We aimed to identify topics and outcomes salient to patients and caregivers for inclusion in the Kidney Health Australia Caring for Australasians with Renal Impairment (KHA-CARI) clinical practice guideline on the screening and management of infectious microorganisms in hemodialysis units. Methods: A facilitated workshop was conducted with 11 participants (patients [n = 8], caregivers [n = 3]). Participants identified and discussed potential topics for inclusion in the guidelines, which were compared to those developed by the guideline working group. The workshop transcript was thematically analyzed to identify and describe the reasons underpinning their priorities. Findings: Patients and caregivers identified a range of topics already covered by the scope of the proposed guidelines and also suggested additional topics: privacy and confidentiality, psychosocial care during/after disease notification, quality of transportation, psychosocial treatment of patients in isolation, patient/caregiver education and engagement, and patient advocacy. Five themes characterized discussion and underpinned their choices: shock and vulnerability, burden of isolation, fear of infection, respect for privacy and confidentiality, and confusion over procedural inconsistencies. Discussion: Patients and caregivers emphasized the need for guidelines to address patient education and engagement, and the psychosocial implications of communication and provision of care in the context of infectious microorganisms in hemodialysis units. Integrating patient and caregiver perspectives can help to improve the relevance of guidelines to enhance quality of care, patient experiences, and health and psychosocial outcomes.
Language eng
DOI 10.1111/hdi.12457
Field of Research 111799 Public Health and Health Services not elsewhere classified
1103 Clinical Sciences
Socio Economic Objective 920499 Public Health (excl. Specific Population Health) not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, International Society for Hemodialysis
Persistent URL http://hdl.handle.net/10536/DRO/DU:30086553

Document type: Journal Article
Collection: School of Medicine
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