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Experiences of participation in goal setting for people with stroke-induced aphasia in Norway. A qualitative study

Berg, K, Askim, T, Balandin, Susan, Armstrong, E and Rise, MB 2016, Experiences of participation in goal setting for people with stroke-induced aphasia in Norway. A qualitative study, Disability and rehabilitation, vol. 39, no. 11, pp. 1-10, doi: 10.1080/09638288.2016.1185167.

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Title Experiences of participation in goal setting for people with stroke-induced aphasia in Norway. A qualitative study
Author(s) Berg, K
Askim, T
Balandin, SusanORCID iD for Balandin, Susan
Armstrong, E
Rise, MB
Journal name Disability and rehabilitation
Volume number 39
Issue number 11
Start page 1
End page 10
Total pages 10
Publisher Taylor & Francis
Place of publication Abdingdon, Eng.
Publication date 2016-06-13
ISSN 0963-8288
Keyword(s) clinical decision-making
client participation
person-centered rehabilitation
shared decision-making
semi-structured interviews
systematic text condensation
Science & Technology
Life Sciences & Biomedicine
Summary PURPOSE: The body of research into client participation in aphasia rehabilitation is increasing, but the evidence on how it is implemented into clinical practice is still scarce. Particularly, the importance of including the "insider's perspective" has been demanded. The aim of this study was to explore how people with aphasia experienced client participation during the process of goal setting and clinical decision making in language rehabilitation. METHODS: Fifteen people with stroke-induced aphasia participated in semi-structured in-depth interviews. A qualitative analysis using Systematic Text Condensation was undertaken. RESULTS: Analysis revealed four main themes: (1) pleased with services, (2) vagueness in language rehabilitation, (3) personal goals exist, and (4) desired level of participation. CONCLUSION: Even though people with stroke-induced aphasia overall are pleased with the language rehabilitation, there is a need for greater emphasis on making the framework of language rehabilitation less vague. Therapists should also spend more time on collaboration with people with stroke-induced aphasia and use available methods to support communication and collaboration. The findings underscore the need for further exploration of the potential outcomes of implementing client participation in goal setting and clinical decision making for persons with stroke-induced aphasia. Implications for rehabilitation All persons with stroke induced aphasia should be asked about their goals for rehabilitation not only once, but during the whole continuum of their rehabilitation journey. Rehabilitation professionals should place greater emphasis on client participation by asking people with stroke induced aphasia how they prefer to participate at different stages of rehabilitation. To ensure active participation for those who wants it, existing tools and techniques which promoted collaborative goal setting should be better incorporated.
Language eng
DOI 10.1080/09638288.2016.1185167
Field of Research 110399 Clinical Sciences not elsewhere classified
Socio Economic Objective 970111 Expanding Knowledge in the Medical and Health Sciences
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, Informa UK
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Document type: Journal Article
Collection: School of Health and Social Development
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