Concerns and worries in people living with inflammatory bowel disease (IBD): A mixed methods study.

Keeton, Rachel L, Mikocka-Walus, Antonina and Andrews, Jane M 2015, Concerns and worries in people living with inflammatory bowel disease (IBD): A mixed methods study., Journal of Psychosomatic Research, vol. 78, no. 6, pp. 573-578, doi: 10.1016/j.jpsychores.2014.12.004.

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Title Concerns and worries in people living with inflammatory bowel disease (IBD): A mixed methods study.
Author(s) Keeton, Rachel L
Mikocka-Walus, AntoninaORCID iD for Mikocka-Walus, Antonina
Andrews, Jane M
Journal name Journal of Psychosomatic Research
Volume number 78
Issue number 6
Start page 573
End page 578
Total pages 6
Publisher Elsevier
Place of publication Amsterdam, The Netherlands
Publication date 2015-06
ISSN 1879-1360
Keyword(s) Anxiety symptoms
Depression symptoms
Inflammatory bowel disease
Summary OBJECTIVE: This mixed-methods study aimed to explore concerns and worries related to living with inflammatory bowel disease (IBD). METHODS: Overall, 294 patients with a clinically established diagnosis of IBD were enrolled in this cross-sectional study. Concerns and worries were measured with one open-ended question. Measures of anxiety and depressive symptoms and disease activity were also administered. A thematic analysis was conducted and thematic map created. Spearman's rho was used to identify univariate correlations between predictors and the main themes. Binary logistic regression was used to test the predictors of the main themes. RESULTS: Despite the majority of study participants being in IBD remission (74%, n=217), all but 11 reported significant IBD-related concerns. Twenty two percent reported symptoms of depression and 41% of anxiety. Four themes were identified: Quality of life (51%); Unpredictability (35%); Symptoms (34%) and Treatments (19%). Males and older people were less concerned about Quality of life (OR=.597, 95% CI: .363-.980 and OR=.980, 95% CI: .965-.995, respectively). Those in remission were less concerned about Symptoms (OR=.510, 95% CI: .281- .926) while those with longer disease duration worried more about the Symptoms (OR=1.035, 95% CI: 1.010-1.061). Males were less concerned about Treatments (OR=.422, 95% CI: .229-.777). CONCLUSION: IBD patients report significant disease-related concerns even when in remission. Further exploration of what predicts patient concerns may help in shaping health-care delivery so that it better addresses patient needs.
Language eng
DOI 10.1016/j.jpsychores.2014.12.004
Field of Research 119999 Medical and Health Sciences not elsewhere classified
179999 Psychology and Cognitive Sciences not elsewhere classified
Socio Economic Objective 929999 Health not elsewhere classified
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2015, Elsevier
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Document type: Journal Article
Collections: Faculty of Health
School of Psychology
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