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Motor Neurone Disease (MND) and Amyotrophic Lateral Sclerosis (ALS): Social Media Communication on Selected #MND and #ALS Tagged Tweets

Hemsley, Bronwyn, Palmer, Stuart, Goonan, Wendy and Dann, Stephen 2017, Motor Neurone Disease (MND) and Amyotrophic Lateral Sclerosis (ALS): Social Media Communication on Selected #MND and #ALS Tagged Tweets, in HICSS-50 : Proceedings of the 2017 50th Hawaii International Conference on System Sciences, University of Hawaii at Manoa, Big Island, Haw., pp. 3764-3773.

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Title Motor Neurone Disease (MND) and Amyotrophic Lateral Sclerosis (ALS): Social Media Communication on Selected #MND and #ALS Tagged Tweets
Author(s) Hemsley, Bronwyn
Palmer, StuartORCID iD for Palmer, Stuart orcid.org/0000-0002-2517-0597
Goonan, Wendy
Dann, Stephen
Conference name Hawaii International Conference on System Sciences (2017 : 50th : Big Island, Hawaii)
Conference location Big Island, Hawaii
Conference dates 2017/01/04 - 2017/01/07
Title of proceedings HICSS-50 : Proceedings of the 2017 50th Hawaii International Conference on System Sciences
Publication date 2017
Start page 3764
End page 3773
Total pages 10
Publisher University of Hawaii at Manoa
Place of publication Big Island, Haw.
Keyword(s) Motor Neurone Disease
Amyotrophic Lateral Sclerosis
Social Media
Twitter
Text analytics
Summary In March-April 2016, 3288 original tweets tagged with #MND #ALS and other minor related tags (e.g., #cureALS #cureMND) were analysed using mixed quantitative and qualitative methods on tweet data and content. In this paper we outline the technical methods used in gathering and selecting relevant tweets for analysis, and present the results including inductive coding of content themes. The findings will inform (a) future social media research in relation to MND/ALS, (b) improved supports for people with MND/ALS and their families to use Twitter for information exchange, advocacy, and as a non-verbal form of communication, and (c) knowledge for MND/ALS service providers and philanthropic organisations on ways to engage with adults with MND/ALS in Twitter.
ISBN 9780998133102
Language eng
Field of Research 110904 Neurology and Neuromuscular Diseases
170204 Linguistic Processes (incl Speech Production and Comprehension)
080709 Social and Community Informatics
Socio Economic Objective 920201 Allied Health Therapies (excl. Mental Health Services)
HERDC Research category E1 Full written paper - refereed
ERA Research output type E Conference publication
Copyright notice ©2017, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution Non-Commercial No-Derivatives licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30090415

Document type: Conference Paper
Collections: School of Engineering
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.