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Exploring the rationale, experience and impact of using Cancer Information and Support (CIS) services: an international qualitative study

Boltong, Anna, Ledwick, Martin, Babb, Kevin, Sutton, Clare and Ugalde, Anna 2017, Exploring the rationale, experience and impact of using Cancer Information and Support (CIS) services: an international qualitative study, Supportive care in cancer, vol. 25, no. 4, pp. 1221-1228, doi: 10.1007/s00520-016-3513-7.

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Title Exploring the rationale, experience and impact of using Cancer Information and Support (CIS) services: an international qualitative study
Author(s) Boltong, Anna
Ledwick, Martin
Babb, Kevin
Sutton, Clare
Ugalde, Anna
Journal name Supportive care in cancer
Volume number 25
Issue number 4
Start page 1221
End page 1228
Total pages 8
Publisher Springer Verlag
Place of publication Berlin, Germany
Publication date 2017-04
ISSN 0941-4355
1433-7339
Keyword(s) Cancer helpline
Cancer information
Oncology nursing
Patient empowerment
Patient experience
Supportive care
Science & Technology
Life Sciences & Biomedicine
Oncology
Health Care Sciences & Services
Rehabilitation
Summary The aim of this study was to develop an in-depth understanding of the rationale, experiences, evaluation and outcomes of using Cancer Information and Support (CIS) services in Australia, the UK and USA. Semi-structured interviews were used to gather data between November 2015 and January 2016. Telephone interviews were recorded, de-identified, transcribed and thematically analysed. Ten users from each of three international CIS services (n = 30 in total) were recruited. Participants were eligible for inclusion if they had utilised the CIS in 2015 via telephone contact with a cancer nurse and identified as a patient or cancer survivor, or friend or family member of such a person. Four major themes were derived and included a total of 25 sub-themes. Key themes included (i) drivers for access, (ii) experience of the service, (iii) impact and (iv) an adjunct to cancer treatment services. Cancer Information and Support nurses internationally act as expert navigators, educators and compassionate communicators who 'listen between the lines' to enable callers to better understand and contextualise their situation and discuss it with their healthcare team and family and friends. Use of the service can result in reduced worry, extend support repertoires and enable use of new knowledge and language as a tool to getting the most from the healthcare team. The positioning of CIS alongside cancer treatment services aids fuller integration of supportive care, benefiting both patients and clinicians.
Language eng
DOI 10.1007/s00520-016-3513-7
Field of Research 111099 Nursing not elsewhere classified
111299 Oncology and Carcinogenesis not elsewhere classified
111708 Health and Community Services
11 Medical And Health Sciences
17 Psychology And Cognitive Sciences
Socio Economic Objective 920210 Nursing
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution non-commercial licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30090448

Document type: Journal Article
Collections: School of Nursing and Midwifery
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.