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An investigation of routes to cancer diagnosis in 10 international jurisdictions, as part of the International Cancer Benchmarking Partnership: survey development and implementation

Weller, David, Vedsted, Peter, Anandan, Chantelle, Zalounina, Alina, Fourkala, Evangelina Ourania, Desai, Rakshit, Liston, William, Jensen, Henry, Barisic, Andriana, Gavin, Anna, Grunfeld, Eva, Lambe, Mats, Law, Rebecca-Jane, Malmberg, Martin, Neal, Richard D., Kalsi, Jatinderpal, Turner, Donna, White, Victoria, Bomb, Martine, Menon, Usha and ICBP Module 4 Working Group* 2016, An investigation of routes to cancer diagnosis in 10 international jurisdictions, as part of the International Cancer Benchmarking Partnership: survey development and implementation, BMJ open, vol. 6, no. 7, pp. 1-12, doi: 10.1136/bmjopen-2015-009641.

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Title An investigation of routes to cancer diagnosis in 10 international jurisdictions, as part of the International Cancer Benchmarking Partnership: survey development and implementation
Author(s) Weller, David
Vedsted, Peter
Anandan, Chantelle
Zalounina, Alina
Fourkala, Evangelina Ourania
Desai, Rakshit
Liston, William
Jensen, Henry
Barisic, Andriana
Gavin, Anna
Grunfeld, Eva
Lambe, Mats
Law, Rebecca-Jane
Malmberg, Martin
Neal, Richard D.
Kalsi, Jatinderpal
Turner, Donna
White, VictoriaORCID iD for White, Victoria orcid.org/0000-0001-6619-8484
Bomb, Martine
Menon, Usha
ICBP Module 4 Working Group*
Journal name BMJ open
Volume number 6
Issue number 7
Article ID e009641
Start page 1
End page 12
Total pages 12
Publisher BMJ Group
Place of publication London, Eng.
Publication date 2016-07-25
ISSN 2044-6055
Keyword(s) early detection of cancer
general practice
health services research
primary health care
time factors, diagnosis
ICBP Module 4 Working Group*
Summary OBJECTIVES: This paper describes the methods used in the International Cancer Benchmarking Partnership Module 4 Survey (ICBPM4) which examines time intervals and routes to cancer diagnosis in 10 jurisdictions. We present the study design with defining and measuring time intervals, identifying patients with cancer, questionnaire development, data management and analyses. DESIGN AND SETTING: Recruitment of participants to the ICBPM4 survey is based on cancer registries in each jurisdiction. Questionnaires draw on previous instruments and have been through a process of cognitive testing and piloting in three jurisdictions followed by standardised translation and adaptation. Data analysis focuses on comparing differences in time intervals and routes to diagnosis in the jurisdictions. PARTICIPANTS: Our target is 200 patients with symptomatic breast, lung, colorectal and ovarian cancer in each jurisdiction. Patients are approached directly or via their primary care physician (PCP). Patients' PCPs and cancer treatment specialists (CTSs) are surveyed, and 'data rules' are applied to combine and reconcile conflicting information. Where CTS information is unavailable, audit information is sought from treatment records and databases. MAIN OUTCOMES: Reliability testing of the patient questionnaire showed that agreement was complete (κ=1) in four items and substantial (κ=0.8, 95% CI 0.333 to 1) in one item. The identification of eligible patients is sufficient to meet the targets for breast, lung and colorectal cancer. Initial patient and PCP survey response rates from the UK and Sweden are comparable with similar published surveys. Data collection was completed in early 2016 for all cancer types. CONCLUSION: An international questionnaire-based survey of patients with cancer, PCPs and CTSs has been developed and launched in 10 jurisdictions. ICBPM4 will help to further understand international differences in cancer survival by comparing time intervals and routes to cancer diagnosis.
Language eng
DOI 10.1136/bmjopen-2015-009641
Field of Research 111202 Cancer Diagnosis
Socio Economic Objective 920102 Cancer and Related Disorders
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2017, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution non-commercial licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30092207

Document type: Journal Article
Collections: School of Psychology
Open Access Collection
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.