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A relational approach to genetic counseling for hereditary breast and ovarian cancer

Forbes Shepherd, Rowan, Browne, Tamara Kayali and Warwick, Linda 2017, A relational approach to genetic counseling for hereditary breast and ovarian cancer, Journal of genetic counseling, vol. 26, no. 2, pp. 283-299, doi: 10.1007/s10897-016-0022-2.

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Title A relational approach to genetic counseling for hereditary breast and ovarian cancer
Author(s) Forbes Shepherd, Rowan
Browne, Tamara KayaliORCID iD for Browne, Tamara Kayali orcid.org/0000-0002-7249-1043
Warwick, Linda
Journal name Journal of genetic counseling
Volume number 26
Issue number 2
Start page 283
End page 299
Total pages 17
Publisher Springer
Place of publication New York, N.Y.
Publication date 2017-04
ISSN 1059-7700
1573-3599
Keyword(s) relational approach
genetic information
disclosure
ethical duty
familial responsibility
genetic counseling practice and theory
Summary Ethical issues arise for genetic counselors when aclient fails to disclose a genetic diagnosis of hereditary diseaseto family: they must consider the rights of the individual clientto privacy and confidentiality as well as the rights of thefamily to know their genetic risk. Although considerable workhas addressed issues of non-disclosure from the client’sperspective, there is a lack of qualitative research into howgenetic counselors address this issue in practice. In this study,a qualitative approach was taken to investigate whethergenetic counselors in Australia use a relational approach toencourage the disclosure of genetic information from hereditarybreast and ovarian cancer (HBOC) clients among familymembers; and if so, how they use it. Semi-structured qualitativeinterviews were conducted with 16 genetic counselorsfrom selected states across Australia. Data collection andanalysis were guided by a basic iterative approach incorporatinga hybrid methodology to thematic analysis. The findingsprovide indicative evidence of genetic counselors employing arelational approach in three escalating stages—covert, overtand authoritative—to encourage the disclosure of geneticinformation. The findings lend credence to the notion thatgenetic counselors envision a form of relational autonomyfor their clients in the context of sharing genetic information,and they depart from individualistic conceptions of care/solely client-centered counseling when addressing the needsof other family members to know their genetic status.
Language eng
DOI 10.1007/s10897-016-0022-2
Field of Research 110399 Clinical Sciences not elsewhere classified
1103 Clinical Sciences
Socio Economic Objective 920102 Cancer and Related Disorders
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, National Society of Genetic Counselors
Persistent URL http://hdl.handle.net/10536/DRO/DU:30092851

Document type: Journal Article
Collections: Faculty of Health
School of Medicine
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