A relational approach to genetic counseling for hereditary breast and ovarian cancer Forbes Shepherd, Rowan, Browne, Tamara Kayali and Warwick, Linda 2017, A relational approach to genetic counseling for hereditary breast and ovarian cancer, Journal of genetic counseling, vol. 26, no. 2, pp. 283-299, doi: 10.1007/s10897-016-0022-2. Attached Files Name Description MIMEType Size Downloads Title A relational approach to genetic counseling for hereditary breast and ovarian cancer Author(s) Forbes Shepherd, Rowan Browne, Tamara Kayali orcid.org/0000-0002-7249-1043 Warwick, Linda Journal name Journal of genetic counseling Volume number 26 Issue number 2 Start page 283 End page 299 Total pages 17 Publisher Springer Place of publication New York, N.Y. Publication date 2017-04 ISSN 1059-7700 1573-3599 Keyword(s) relational approach genetic information disclosure ethical duty familial responsibility genetic counseling practice and theory Summary Ethical issues arise for genetic counselors when aclient fails to disclose a genetic diagnosis of hereditary diseaseto family: they must consider the rights of the individual clientto privacy and confidentiality as well as the rights of thefamily to know their genetic risk. Although considerable workhas addressed issues of non-disclosure from the client’sperspective, there is a lack of qualitative research into howgenetic counselors address this issue in practice. In this study,a qualitative approach was taken to investigate whethergenetic counselors in Australia use a relational approach toencourage the disclosure of genetic information from hereditarybreast and ovarian cancer (HBOC) clients among familymembers; and if so, how they use it. Semi-structured qualitativeinterviews were conducted with 16 genetic counselorsfrom selected states across Australia. Data collection andanalysis were guided by a basic iterative approach incorporatinga hybrid methodology to thematic analysis. The findingsprovide indicative evidence of genetic counselors employing arelational approach in three escalating stages—covert, overtand authoritative—to encourage the disclosure of geneticinformation. The findings lend credence to the notion thatgenetic counselors envision a form of relational autonomyfor their clients in the context of sharing genetic information,and they depart from individualistic conceptions of care/solely client-centered counseling when addressing the needsof other family members to know their genetic status. Language eng DOI 10.1007/s10897-016-0022-2 Field of Research 110399 Clinical Sciences not elsewhere classified 1103 Clinical Sciences Socio Economic Objective 920102 Cancer and Related Disorders HERDC Research category C1.1 Refereed article in a scholarly journal ERA Research output type C Journal article Copyright notice ©2016, National Society of Genetic Counselors Free to Read? Yes Persistent URL http://hdl.handle.net/10536/DRO/DU:30092851 Document type: Journal Article Collections: Faculty of Health School of Medicine Open Access Collection Related Links Link Description Link to full-text (open access)   Connect to published version Go to link with your DU access privileges     Unless expressly stated otherwise, the copyright for items in DRO is owned by the author, with all rights reserved. Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au. Versions Version Filter Type Mon, 03 Apr 2017, 15:35:47 EST Tue, 04 Apr 2017, 05:07:28 EST Tue, 04 Apr 2017, 06:08:00 EST Tue, 04 Apr 2017, 09:13:10 EST Tue, 25 Apr 2017, 06:04:25 EST Mon, 05 Jun 2017, 09:49:15 EST Mon, 05 Jun 2017, 09:57:17 EST Mon, 05 Jun 2017, 09:58:26 EST Sat, 28 Oct 2017, 01:33:11 EST Sat, 12 May 2018, 02:32:35 EST Tue, 13 Oct 2020, 15:35:35 EST Filtered Full Citation counts:   Cited 6 times in TR Web of Science Cited 7 times in Scopus Search Google Scholar Access Statistics: 318 Abstract Views, 0 File Downloads  -  Detailed Statistics Created: Mon, 03 Apr 2017, 15:35:47 EST

Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.