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Protocol for a systematic review of preference-based instruments for measuring care-related outcomes and their suitability for the palliative care setting

McCaffrey, Nikki, Al-Janabi, Hareth, Currow, David, Hoefman, Renske and Ratcliffe, Julie 2016, Protocol for a systematic review of preference-based instruments for measuring care-related outcomes and their suitability for the palliative care setting, BMJ open, vol. 6, no. 9, pp. 1-6, doi: 10.1136/bmjopen-2016-012181.

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Title Protocol for a systematic review of preference-based instruments for measuring care-related outcomes and their suitability for the palliative care setting
Author(s) McCaffrey, NikkiORCID iD for McCaffrey, Nikki orcid.org/0000-0003-3684-3723
Al-Janabi, Hareth
Currow, David
Hoefman, Renske
Ratcliffe, Julie
Journal name BMJ open
Volume number 6
Issue number 9
Article ID e012181
Start page 1
End page 6
Total pages 6
Publisher BMJ Group
Place of publication London, Eng.
Publication date 2016-09-01
ISSN 2044-6055
Summary Introduction: Despite informal caregivers' integral role in supporting people affected by disease or disability, economic evaluations often ignore the costs and benefits experienced by this group, especially in the palliative setting. The purpose of this systematic review is to identify preference-based instruments for measuring care-related outcomes and provide guidance on the selection of instrument in palliative care economic evaluations.

Methods and analysis: A comprehensive search of the literature will be conducted from database inception (ASSIA; CINAHL; Cochrane library including DARE, NHS EED, HTA; Econlit; Embase; PsychINFO; PubMed). Published peer-reviewed, English-language articles reporting preference-based instruments for measuring care-related outcomes in any clinical area will be included. One researcher will complete the searches and screen the results for potentially eligible studies. A randomly selected subset of 10% citations will be independently screened by two researchers. Any disagreement will be resolved by consensus among the research team. Subsequently, a supplementary search will identify studies detailing the development, valuation, validation and application of the identified instruments. The degree of suitability of the instruments for palliative economic evaluations will be assessed using criteria in the International Society for Quality of Life Research minimum standards for patient-reported outcome measures, the checklist for reporting valuation studies of multiattribute utility-based instruments and information on the development of the instrument in the palliative setting. A narrative summary of the included studies and instruments will be provided; similarities and differences will be described and possible reasons for variations explored. Recommendations for practice on selection of instruments in palliative care economic analyses will be provided.

Ethics and dissemination: This is a planned systematic review of published literature. Therefore, ethics approval to conduct this research is not required. Findings will be presented at leading palliative care and health economic conferences and published in a peer-reviewed journal.
Language eng
DOI 10.1136/bmjopen-2016-012181
Field of Research 111799 Public Health and Health Services not elsewhere classified
Socio Economic Objective 920499 Public Health (excl. Specific Population Health) not elsewhere classified
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution non-commercial licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30093113

Document type: Journal Article
Collections: School of Health and Social Development
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.