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What aspects of quality of life are important from palliative care patients' perspectives? A systematic review of qualitative research

McCaffrey, Nicola, Bradley, Sandra, Ratcliffe, Julie and Currow, David C. 2016, What aspects of quality of life are important from palliative care patients' perspectives? A systematic review of qualitative research, Journal of pain and symptom management, vol. 52, no. 2, pp. 318-328.e5, doi: 10.1016/j.jpainsymman.2016.02.012.

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Title What aspects of quality of life are important from palliative care patients' perspectives? A systematic review of qualitative research
Author(s) McCaffrey, NicolaORCID iD for McCaffrey, Nicola orcid.org/0000-0003-3684-3723
Bradley, Sandra
Ratcliffe, Julie
Currow, David C.
Journal name Journal of pain and symptom management
Volume number 52
Issue number 2
Start page 318
End page 328.e5
Total pages 16
Publisher Elsevier
Place of publication Philadelphia, Pa.
Publication date 2016-08
ISSN 0885-3924
1873-6513
Keyword(s) end of life
quality of life
hospice
palliative care
review
qualitative
framework synthesis
Summary Context. Despite the availability of numerous tools professing to measure quality of life (QOL) in the palliative care setting, no single instrument includes all patient-valued domains.

Objectives. To identify which aspects of QOL are important from palliative care patients’ perspectives, aiding coverage, and content validity evaluation of available tools.

Methods. A systematic review and synthesis of qualitative research was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. ASSIA, CINAHL, Cochrane library, Embase, Medline, PsycINFO, and PubMed were searched from database inception to December 31, 2015. Published, peer-reviewed, English-language articles reporting primary qualitative data investigating QOL domains in adults with a progressive, life-limiting illness were included. Studies a priori exploring a chosen aspect of QOL were not included. Articles scoring ≤2 on reporting quality were excluded. Framework synthesis was used to identify key themes across the studies.

Results. Overall, 3589 articles were screened and 24 studies were included. Eight important aspects of QOL were identified: physical; personal autonomy; emotional; social; spiritual; cognitive; healthcare; and preparatory. All but one study discussed spiritual aspects, whereas only six studies mentioned cognitive aspects.

Conclusion. A broad range of domains are important to the QOL of people with life-limiting illnesses receiving palliation. Refinement of measures is needed to help ensure services address issues valued by patients such as preparation for death and aspects of health care provision, elements which are seldom included in currently available preference-based measures used to inform value for money decisions in palliative care.
Language eng
DOI 10.1016/j.jpainsymman.2016.02.012
Field of Research 111799 Public Health and Health Services not elsewhere classified
Socio Economic Objective 920499 Public Health (excl. Specific Population Health) not elsewhere classified
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, American Academy of Hospice and Palliative Medicine
Persistent URL http://hdl.handle.net/10536/DRO/DU:30093382

Document type: Journal Article
Collection: School of Health and Social Development
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