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Developing consensus measures for global programs: lessons from the Global Alliance for Chronic Diseases Hypertension research program

Riddell, Michaela A, Edwards, Nancy, Thompson, Simon R, Bernabe-Ortiz, Antonio, Praveen, Devarsetty, Johnson, Claire, Kengne, Andre P, Liu, Peter, McCready, Tara, Ng, Eleanor, Nieuwlaat, Robby, Ovbiagele, Bruce, Owolabi, Mayowa, Peiris, David, Thrift, Amanda G, Tobe, Sheldon, Yusoff, Khalid, Nowson, Caryl and Moodie, Marj 2017, Developing consensus measures for global programs: lessons from the Global Alliance for Chronic Diseases Hypertension research program, Globalization and health, vol. 13, pp. 1-12, doi: 10.1186/s12992-017-0242-8.

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Title Developing consensus measures for global programs: lessons from the Global Alliance for Chronic Diseases Hypertension research program
Author(s) Riddell, Michaela A
Edwards, Nancy
Thompson, Simon R
Bernabe-Ortiz, Antonio
Praveen, Devarsetty
Johnson, Claire
Kengne, Andre P
Liu, Peter
McCready, Tara
Ng, Eleanor
Nieuwlaat, Robby
Ovbiagele, Bruce
Owolabi, Mayowa
Peiris, David
Thrift, Amanda G
Tobe, Sheldon
Yusoff, Khalid
Nowson, CarylORCID iD for Nowson, Caryl orcid.org/0000-0001-6586-7965
Moodie, Marj
Journal name Globalization and health
Volume number 13
Article ID 17
Start page 1
End page 12
Total pages 12
Publisher BioMed Central
Place of publication London, Eng.
Publication date 2017
ISSN 1744-8603
1744-8603
Keyword(s) Implementation
Consensus Measures
Implementation Context
Hypertension
Low and middle income countries
Summary Background
The imperative to improve global health has prompted transnational research partnerships to investigate common health issues on a larger scale. The Global Alliance for Chronic Diseases (GACD) is an alliance of national research funding agencies. To enhance research funded by GACD members, this study aimed to standardise data collection methods across the 15 GACD hypertension research teams and evaluate the uptake of these standardised measurements. Furthermore we describe concerns and difficulties associated with the data harmonisation process highlighted and debated during annual meetings of the GACD funded investigators.

With these concerns and issues in mind, a working group comprising representatives from the 15 studies iteratively identified and proposed a set of common measures for inclusion in each of the teams’ data collection plans. One year later all teams were asked which consensus measures had been implemented.

Results

Important issues were identified during the data harmonisation process relating to data ownership, sharing methodologies and ethical concerns. Measures were assessed across eight domains; demographic; dietary; clinical and anthropometric; medical history; hypertension knowledge; physical activity; behavioural (smoking and alcohol); and biochemical domains. Identifying validated measures relevant across a variety of settings presented some difficulties. The resulting GACD hypertension data dictionary comprises 67 consensus measures. Of the 14 responding teams, only two teams were including more than 50 consensus variables, five teams were including between 25 and 50 consensus variables and four teams were including between 6 and 24 consensus variables, one team did not provide details of the variables collected and two teams did not include any of the consensus variables as the project had already commenced or the measures were not relevant to their study.

Conclusions

Deriving consensus measures across diverse research projects and contexts was challenging. The major barrier to their implementation was related to the time taken to develop and present these measures. Inclusion of consensus measures into future funding announcements would facilitate researchers integrating these measures within application protocols. We suggest that adoption of consensus measures developed here, across the field of hypertension, would help advance the science in this area, allowing for more comparable data sets and generalizable inferences.
Language eng
DOI 10.1186/s12992-017-0242-8
Field of Research 111706 Epidemiology
1117 Public Health And Health Services
Socio Economic Objective 920404 Disease Distribution and Transmission (incl. Surveillance and Response)
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Grant ID GACD collaboration
Copyright notice ©2017, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30093802

Document type: Journal Article
Collections: School of Exercise and Nutrition Sciences
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.