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Caring for the person with cancer: information and support needs and the role of technology

Heynsbergh, Natalie, Botti, Mari, Heckel, Leila and Livingston, Patricia M 2018, Caring for the person with cancer: information and support needs and the role of technology, Psycho-oncology, vol. 27, no. 6, pp. 1650-1655, doi: 10.1002/pon.4722.

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Title Caring for the person with cancer: information and support needs and the role of technology
Author(s) Heynsbergh, Natalie
Botti, MariORCID iD for Botti, Mari orcid.org/0000-0002-2782-0987
Heckel, LeilaORCID iD for Heckel, Leila orcid.org/0000-0002-9138-1034
Livingston, Patricia MORCID iD for Livingston, Patricia M orcid.org/0000-0001-6616-3839
Journal name Psycho-oncology
Volume number 27
Issue number 6
Start page 1650
End page 1655
Total pages 6
Publisher Wiley
Place of publication London, England
Publication date 2018-06
ISSN 1057-9249
1099-1611
Keyword(s) cancer
caregivers
communication
information
needs assessment
neoplasms
oncology
technology
Science & Technology
Social Sciences
Life Sciences & Biomedicine
Psychology
Psychology, Multidisciplinary
Social Sciences, Biomedical
Biomedical Social Sciences
FAMILY CAREGIVERS
DEPRESSION
SURVIVORS
ANXIETY
BURDEN
CARE
Summary Objective
Informal carers experience a variety of information and support needs when providing care to someone with cancer. It is unclear when carers seek information and what resources they access to support themselves throughout the cancer trajectory.

Methods

A sample of 45 carers and 15 oncology nurses were recruited to participate in either focus groups or phone interviews.

Results

Carers in the study were more likely to be women (60%), caring for a spouse or partner (64.4%), living with the patient (86.7%), and hold a university degree (46.7%). The majority of oncology nurses were females (66.6%). Findings showed that carers had limited access to adequate information as needs arose. Supports used to address information needs included information booklets, the Internet, and communication with healthcare professionals or with other carers. Barriers in communication between nurses and carers impacted on the adequacy of information received. Participants reported that technology, such as smartphone applications, might be appropriate for improving information and support needs.

Conclusions
Caring for someone with cancer is multifaceted. Carers need access to timely information to help them effectively manage patients' needs. Future studies should assess the role of contemporary approaches, such as digital technology, as a solution to the delivery of information and support for carers of people with cancer.
Language eng
DOI 10.1002/pon.4722
Field of Research 111299 Oncology and Carcinogenesis not elsewhere classified
1112 Oncology And Carcinogenesis
1701 Psychology
1103 Clinical Sciences
Socio Economic Objective 920202 Carer Health
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2018, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30108021

Document type: Journal Article
Collections: School of Nursing and Midwifery
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.