Chasing cures: rewards and risks for rare disease patient organisations involved in research

Pinto, Deirdre F, Martin, Dominique and Chenhall, Richard 2018, Chasing cures: rewards and risks for rare disease patient organisations involved in research, Biosocieties, vol. 13, no. 1, pp. 123-147, doi: 10.1057/s41292-017-0061-4.


Title Chasing cures: rewards and risks for rare disease patient organisations involved in research
Author(s) Pinto, Deirdre F
Martin, DominiqueORCID iD for Martin, Dominique orcid.org/0000-0001-9363-0770
Chenhall, Richard
Journal name Biosocieties
Volume number 13
Issue number 1
Start page 123
End page 147
Total pages 25
Publisher Palgrave Macmillan
Place of publication Basingstoke, Eng.
Publication date 2018-03
ISSN 1745-8552
Keyword(s) patient organization
rare disease
research
public and patient involvement
Language eng
DOI 10.1057/s41292-017-0061-4
Field of Research 1608 Sociology
2201 Applied Ethics
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2017, Macmillan Publishers Ltd
Persistent URL http://hdl.handle.net/10536/DRO/DU:30108991

Document type: Journal Article
Collection: School of Medicine
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