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Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study

Bond, K. S., Jorm, A. F., Kitchener, B. A., Kelly, C. M. and Chalmers, K. J. 2016, Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study, BMC geriatrics, vol. 16, pp. 1-10, doi: 10.1186/s12877-016-0305-3.

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Title Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study
Author(s) Bond, K. S.
Jorm, A. F.
Kitchener, B. A.
Kelly, C. M.
Chalmers, K. J.
Journal name BMC geriatrics
Volume number 16
Article ID 129
Start page 1
End page 10
Total pages 10
Publisher BioMed Central
Place of publication London, Eng.
Publication date 2016
ISSN 1471-2318
Keyword(s) Confusion
Delirium
Delphi method
Dementia
Dementia carer
Dementia guidelines
Adult
Aged
Caregivers
Cognitive Dysfunction
Compassion Fatigue
Consensus
Cost of Illness
Delphi Technique
Female
Guidelines as Topic
Health Knowledge, Attitudes, Practice
Humans
Male
Needs Assessment
Surveys and Questionnaires
Science & Technology
Life Sciences & Biomedicine
Geriatrics & Gerontology
Gerontology
HEALTH 1ST AID
CROSS-SECTIONAL SURVEY
CAREGIVER BURDEN
ALZHEIMERS-DISEASE
SUICIDAL IDEATION
CONTROLLED-TRIAL
HELPING SOMEONE
CARERS
INTERVENTION
CLINICIAN
Summary BACKGROUND: Assisting a person with dementia can lead to significant carer burden and possible negative outcomes for the person. Using the Delphi method, this study developed expert consensus guidelines for how family and non-professional carers should assist a person who is developing cognitive impairment, or has dementia or delirium. 

METHODS: A systematic search of websites, books and journal articles was conducted to develop a questionnaire containing items about the knowledge, skills and actions needed for assisting a person who is developing cognitive impairment, or has dementia or delirium. These items were rated over three rounds by two international expert panels comprising professionals specialising in research or treatment of dementia, and dementia carer advocates.

RESULTS: A total of 65 participants (43 in the professional panel and 22 in the carer advocate panel) completed all three survey rounds. Of the 656 survey items that were rated, a total of 389 items were endorsed by at least 80 % of each panel. The endorsed items formed the basis of a guidelines document that explains what family and non-professional carers need to know and do when assisting a person who is developing cognitive impairment, or has dementia or delirium. 

CONCLUSIONS: The two groups of experts were able to reach substantial consensus on how to assist a person who is developing cognitive impairment, or has dementia or delirium.
Language eng
DOI 10.1186/s12877-016-0305-3
Field of Research 1103 Clinical Sciences
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2016, The Authors
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30110169

Document type: Journal Article
Collections: School of Psychology
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.