Achievement of patients' preferences for participation in oncological symptom management and its association with perceived quality of care

Lin, Cen, Cohen, Emma, Livingston, Patricia M, Mohebbi, Mohammadreza and Botti, Mari 2019, Achievement of patients' preferences for participation in oncological symptom management and its association with perceived quality of care, Patient preference and adherence, vol. 13, pp. 83-90, doi: 10.2147/PPA.S184373.

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Title Achievement of patients' preferences for participation in oncological symptom management and its association with perceived quality of care
Author(s) Lin, Cen
Cohen, Emma
Livingston, Patricia MORCID iD for Livingston, Patricia M orcid.org/0000-0001-6616-3839
Mohebbi, MohammadrezaORCID iD for Mohebbi, Mohammadreza orcid.org/0000-0001-9713-7211
Botti, MariORCID iD for Botti, Mari orcid.org/0000-0002-2782-0987
Journal name Patient preference and adherence
Volume number 13
Start page 83
End page 90
Total pages 8
Publisher Dove Medical Press
Place of publication Macclesfield, Eng.
Publication date 2019
ISSN 1177-889X
Keyword(s) decision-making
patient participation
quality of care
survey
symptom management
science & technology
life sciences & biomedicine
medicine, general & internal
general & internal medicine
Summary Purpose: The subjectivity of symptom experience and the recognized role of patients in symptom management highlight the need to understand cancer patients' participation in symptom management and to identify the associations between patient participation and quality of care. However, research on patient participation has focused mostly on general healthcare activities, rather than symptom management, especially in cancer-care settings. This study aimed to compare the congruence between cancer patients' preference for and actual perceived experience of participation in symptom management and identify the relationships between preferred and actual patient participation and perceived quality of care. Methods: This was a cross-sectional study. Patient preference and actual experience of participation in symptom management were evaluated with the modified Control Preference Scale among patients recruited from a specialized cancer hospital in China. Patients' perception of quality of care was assessed with the short-form Quality from the Patient's Perspective questionnaire. Results: A total of 162 patients were recruited. Their mean age was 47.5±12.2 years, and 51.9% were females. Patients' perceived actual level of participation in symptom management substantially agreed with their preference (weighted κ-coefficient 0.61, 95% CI 0.45-0.77). There was no significant difference between patients' perception of care quality and level of preference for participation (F=0.35, P=0.722) or actual experience of participation (F=0.76, P=0.519). Higher perceptions of quality of care were found among patients whose preferred roles were achieved (P=0.007) or surpassed (P=0.045). Conclusion: This study identified substantial agreement between patients' preferred and actual participation, given the generally passive preference. The findings indicated that supporting patients to achieve their preferred level of participation may be more important than focusing activities on encouraging increased desire to participate for the purpose of care-quality improvement.
Language eng
DOI 10.2147/PPA.S184373
Field of Research 1103 Clinical Sciences
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2019, Lin et al.
Persistent URL http://hdl.handle.net/10536/DRO/DU:30117214

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