A multilevel investigation of inequalities in clinical and psychosocial outcomes for women after breast cancer

Youl, Philippa H, Baade, Peter D, Aitken, Joanne F, Chambers, Suzanne K, Turrell, Gavin, Pyke, Christopher and Dunn, Jeffrey 2011, A multilevel investigation of inequalities in clinical and psychosocial outcomes for women after breast cancer, BMC cancer, vol. 11, pp. 1-8, doi: 10.1186/1471-2407-11-415.

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Title A multilevel investigation of inequalities in clinical and psychosocial outcomes for women after breast cancer
Author(s) Youl, Philippa H
Baade, Peter D
Aitken, Joanne F
Chambers, Suzanne K
Turrell, GavinORCID iD for Turrell, Gavin orcid.org/0000-0002-3576-8744
Pyke, Christopher
Dunn, Jeffrey
Journal name BMC cancer
Volume number 11
Article ID 415
Start page 1
End page 8
Total pages 8
Publisher BioMed Central
Place of publication London, Eng.
Publication date 2011-09-28
ISSN 1471-2407
Keyword(s) Adult
Age Factors
Breast Neoplasms
Health Services Accessibility
Middle Aged
Risk Factors
Socioeconomic Factors
Young Adult
Science & Technology
Life Sciences & Biomedicine
Summary BACKGROUND: In Australia, breast cancer is the most common cancer affecting Australian women. Inequalities in clinical and psychosocial outcomes have existed for some time, affecting particularly women from rural areas and from areas of disadvantage. We have a limited understanding of how individual and area-level factors are related to each other, and their associations with survival and other clinical and psychosocial outcomes. METHODS/DESIGN: This study will examine associations between breast cancer recurrence, survival and psychosocial outcomes (e.g. distress, unmet supportive care needs, quality of life). The study will use an innovative multilevel approach using area-level factors simultaneously with detailed individual-level factors to assess the relative importance of remoteness, socioeconomic and demographic factors, diagnostic and treatment pathways and processes, and supportive care utilization to clinical and psychosocial outcomes. The study will use telephone and self-administered questionnaires to collect individual-level data from approximately 3, 300 women ascertained from the Queensland Cancer Registry diagnosed with invasive breast cancer residing in 478 Statistical Local Areas Queensland in 2011 and 2012. Area-level data will be sourced from the Australian Bureau of Statistics census data. Geo-coding and spatial technology will be used to calculate road travel distances from patients' residence to diagnostic and treatment centres. Data analysis will include a combination of standard empirical procedures and multilevel modelling. DISCUSSION: The study will address the critical question of: what are the individual- or area-level factors associated with inequalities in outcomes from breast cancer? The findings will provide health care providers and policy makers with targeted information to improve the management of women with breast cancer, and inform the development of strategies to improve psychosocial care for women with breast cancer.
Language eng
DOI 10.1186/1471-2407-11-415
Field of Research 1112 Oncology And Carcinogenesis
HERDC Research category C1.1 Refereed article in a scholarly journal
Copyright notice ©2011, Youl et al.
Persistent URL http://hdl.handle.net/10536/DRO/DU:30119563

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