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"This is our life now. Our new normal": a qualitative study of the unmet needs of carers of stroke survivors

Denham, Alexandra MJ, Wynne, Olivia, Baker, Amanda L, Spratt, Neil J, Turner, Alyna, Magin, Parker, Janssen, Heidi, English, Coralie, Loh, Madeleine and Bonevski, Billie 2019, "This is our life now. Our new normal": a qualitative study of the unmet needs of carers of stroke survivors, PLoS one, vol. 14, no. 5, pp. 1-13, doi: 10.1371/journal.pone.0216682.

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Title "This is our life now. Our new normal": a qualitative study of the unmet needs of carers of stroke survivors
Author(s) Denham, Alexandra MJ
Wynne, Olivia
Baker, Amanda L
Spratt, Neil J
Turner, AlynaORCID iD for Turner, Alyna orcid.org/0000-0001-7389-2546
Magin, Parker
Janssen, Heidi
English, Coralie
Loh, Madeleine
Bonevski, Billie
Journal name PLoS one
Volume number 14
Issue number 5
Article ID e0216682
Start page 1
End page 13
Total pages 13
Publisher Public Library of Science
Place of publication San Francisco, Calif.
Publication date 2019-05-08
ISSN 1932-6203
Keyword(s) Stroke
Family
Interpersonal relationships
Mental health and psychiatry
Emotions
Health insurance
Quality of life
Science & Technology
Multidisciplinary Sciences
Summary Many stroke survivors require care from informal carers such as family members and friends who may experience adverse impacts. This study aimed to qualitatively explore the unmet needs of carers of stroke survivors, and their preferences for interventions and support services. We conducted 24 semi-structured, qualitative interviews with carers of stroke survivors from the Hunter region, Australia. Inductive thematic analysis was used in the context of a needs-led framework to identify key themes of their unmet needs. Key unmet needs identified by carers of stroke survivors in this study centred on four main themes: (1) social relationships and support; (2) adequacy of information; (3) taking care of oneself; and (4) accessing appropriate services. Carers of stroke survivors desired the development of services which provide connectivity to information, training, education and community support; and inclusion in a community with social relationships and other carers of stroke survivors. Ongoing unmet needs often result in adverse health and quality of life outcomes for carers of stroke survivors. Co-designed programs and resources for carers, particularly relating to unmet needs in social, information, self-care and service access domains are needed.
Language eng
DOI 10.1371/journal.pone.0216682
Indigenous content off
Field of Research MD Multidisciplinary
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2019, Denham et al.
Free to Read? Yes
Persistent URL http://hdl.handle.net/10536/DRO/DU:30122894

Document type: Journal Article
Collections: Faculty of Health
School of Psychology
Open Access Collection
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.