Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis

Engel, Lidia, Rand, Stacey, Hoefman, Renske, Bucholc, Jessica, Mihalopoulos, Cathrine, Muldowney, Anne, Ugalde, Anna and McCaffrey, Nikki 2020, Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis, Medical Decision Making, pp. 1-12, doi: 10.1177/0272989X20944193.

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Title Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis
Author(s) Engel, LidiaORCID iD for Engel, Lidia orcid.org/0000-0002-7959-3149
Rand, Stacey
Hoefman, Renske
Bucholc, JessicaORCID iD for Bucholc, Jessica orcid.org/0000-0003-0758-2704
Mihalopoulos, CathrineORCID iD for Mihalopoulos, Cathrine orcid.org/0000-0002-7127-9462
Muldowney, Anne
Ugalde, AnnaORCID iD for Ugalde, Anna orcid.org/0000-0002-2473-8435
McCaffrey, NikkiORCID iD for McCaffrey, Nikki orcid.org/0000-0003-3684-3723
Journal name Medical Decision Making
Start page 1
End page 12
Total pages 12
Publisher Sage
Place of publication London, Eng.
Publication date 2020
ISSN 0272-989X
1552-681X
Keyword(s) Science & Technology
Life Sciences & Biomedicine
Health Care Sciences & Services
Health Policy & Services
Medical Informatics
carer-related quality of life
economic evaluation
informal care
outcome measurement
preference-based measures
CAREGIVERS
HEALTH
ASCOT
INSTRUMENTS
INCLUSION
VALIDITY
IMPACT
Summary Background. To incorporate the spillover effects experienced by carers providing informal care in health policy decisions, new carer-related preference-based measures have been developed for use in economic evaluation, which include the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Carer Experience Scale (CES), and Care-Related Quality of Life (CarerQoL). The aim of this study was to investigate the extent to which these 3 instruments measure complementary or overlapping constructs. Methods. Data were derived from an online survey undertaken with carers residing in Australia. An exploratory factor analysis was conducted to ascertain the underlying latent constructs of the 3 measures. Results. Data from 351 informal carers yielded a 5-factor model describing general quality of life outside caring, problems due to caring, fulfilment from caring, social support with caring, and relationship with the care recipient. Most of the ASCOT-Carer and the CarerQol items loaded onto the first and second factors, respectively. The greatest overlap was observed between CarerQol and CES items loading onto the other 3 shared common factors. Limitations. Online data collection resulted in inconsistent responses, which had to be removed to yield logical data. A convenience sampling approach may have compromised the generalizability of study findings. Conclusion. Although some overlap was observed, the 3 carer-related preference-based measures seem to tap into different constructs of carer-related quality of life and caring experiences and cannot be used interchangeably.
Notes In Press
Language eng
DOI 10.1177/0272989X20944193
Indigenous content off
Field of Research 111714 Mental Health
140208 Health Economics
1117 Public Health and Health Services
1402 Applied Economics
Socio Economic Objective 920410 Mental Health
HERDC Research category C1 Refereed article in a scholarly journal
Persistent URL http://hdl.handle.net/10536/DRO/DU:30141147

Document type: Journal Article
Collections: Faculty of Health
School of Health and Social Development
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