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An online survey of informal caregivers’ unmet needs and associated factors

Denham, AMJ, Wynne, O, Baker, AL, Spratt, NJ, Turner, A, Magin, P, Palazzi, K and Bonevski, B 2020, An online survey of informal caregivers’ unmet needs and associated factors, PLoS ONE, vol. 15, no. 12, pp. 1-15, doi: 10.1371/journal.pone.0243502.

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Title An online survey of informal caregivers’ unmet needs and associated factors
Author(s) Denham, AMJ
Wynne, O
Baker, AL
Spratt, NJ
Turner, AORCID iD for Turner, A orcid.org/0000-0001-7389-2546
Magin, P
Palazzi, K
Bonevski, B
Journal name PLoS ONE
Volume number 15
Issue number 12
Article ID e0243502
Start page 1
End page 15
Total pages 15
Publisher PLOS
Place of publication San Francisco, CA
Publication date 2020-12-10
ISSN 1932-6203
1932-6203
Keyword(s) Science & Technology
Multidisciplinary Sciences
Science & Technology - Other Topics
SUPPORTIVE CARE NEEDS
QUALITY-OF-LIFE
FAMILY CAREGIVERS
UNITED-STATES
CANCER-PATIENTS
HEALTH
PEOPLE
STROKE
EXPERIENCES
CHALLENGES
Summary Purpose/objective: The purpose of this study was to assess the frequency of unmet needs of carers among a convenience sample of carers, and the participant factors associated with unmet needs, to inform the development of interventions that will support a range of caregivers. The aims of this study were to: (1) assess the most frequently reported moderate-high unmet needs of caregivers; and (2) examine the age, gender, condition of the care recipient, and country variables associated with types of unmet needs reported by informal caregivers.Research method/design: An online cross-sectional survey among informal caregivers in English-speaking countries was conducted. Self-reported unmet needs were assessed using an unmet needs measure with the following five unmet needs domains: (1) Health information and support for care recipient; (2) Health service management; (3) Communication and relationship; (4) Self-care; and (5) Support services accessibility. Informal caregivers were asked “In the last month, what was your level of need for help with…”, and the ten highest ranked moderate-high unmet needs presented as ranked proportions. Logistic regression modelling examined the factors associated with types of unmet needs.Results: Overall, 457 caregivers were included in the final analysis. Seven of the ten highest ranked unmet needs experienced by caregivers in the last month were in the Self-care domain, including “Reducing stress in your life” (74.1%). Significant associations were found between younger caregiver age (18–45 years) and reporting moderate-high unmet needs in Health Information and support for care recipient, Health service management, and Support services accessibility (all p’s = <0.05).Conclusions/implications: Caregivers are not experiencing significant differences in unmet needs between countries and caree/care recipient conditions, suggesting that general interventions could be developed to support a range of caregivers across countries. Increased awareness of informal caregivers’ unmet needs, particularly for younger caregivers, among health care providers may improve support provision to caregivers.
Language eng
DOI 10.1371/journal.pone.0243502
Indigenous content off
HERDC Research category C1 Refereed article in a scholarly journal
Copyright notice ©2020, Denham et al.
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30146713

Document type: Journal Article
Collections: Faculty of Health
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