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Choice and control within family relationships: the lived experience of adults with intellectual disability
journal contribution
posted on 2018-06-01, 00:00 authored by Bernadette Curryer, Roger J Stancliffe, Angela DewAngela Dew, Michele Y WieseIncreased choice and control is a driving force of current disability policy in Australia for people with disability and their families. Yet little is known of how adults with intellectual disability (ID) actually experience choice and control within their family relationships. We used interpretative phenomenological analysis of individual, semistructured interviews conducted with 8 Australian adults with ID to understand the meaning given to their experience of family support received around choice and decision making. Three themes were identified: (1) centrality of family, (2) experience of self-determination, and (3) limitations to choice and control. The participants identified trusted family members from whom guidance around choice and decision making was both sought and received, often involving mutual decision making and limitations to control.
History
Journal
Intellectual and developmental disabilitiesVolume
56Issue
3Pagination
188 - 201Publisher
American Association on Intellectual and Developmental DisabilitiesLocation
Washington, D.C.Publisher DOI
ISSN
1934-9556eISSN
1934-9556Language
engPublication classification
C1 Refereed article in a scholarly journalCopyright notice
2018, AAIDDUsage metrics
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