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Co-design of a cancer nutrition care pathway by patients, carers, and health professionals: the CanEAT pathway
journal contributionposted on 2023-02-16, 03:42 authored by J Loeliger, S Dewar, Nicole KissNicole Kiss, J Dumbrell, A Elliott, K Kaegi, A Kelaart, R McIntosh, W Swan, J Stewart
Purpose: Limited practical resources exist to guide optimal nutrition care for patients, carers, and health professionals (HPs). This study aimed to co-design a cancer nutrition care pathway to guide and improve the provision of consistent, evidence-based care with consumers and HPs. Methods: This study utilised an experienced-based co-design (EBCD) approach over five stages. Stage 1 involved stakeholder engagement and a literature review. Stage 2 included a survey and focus groups with patients/carers. Co-design workshops were conducted within stage 3, key stakeholder consultation within stage 4, and the finalisation and dissemination of the cancer nutrition care pathway formed stage 5. Results of stages 3 to 5 are the focus of this paper. Results: Two co-design workshops were held with patients, carers, and HPs (n = 32 workshop 1; n = 32 workshop 2), who collectively agreed on areas of focus and key priorities. Following this, a consultation period was completed with patients, carers, and HPs (n = 45) to refine the pathway. The collective outcome of all study stages was the co-design of a cancer nutrition care pathway (the CanEAT pathway) defining optimal cancer nutrition care that combines evidence-based practice tips into a centralised suite of resources, tools, and clinical guidance. Conclusion: The CanEAT pathway was co-designed by patients, carers, and HPs. The EBCD approach is a meaningful way to develop targeted improvements in cancer care. The CanEAT pathway is freely available to guide and support patients, carers, and HPs to aid the implementation of optimal nutrition care into clinical practice.
JournalSupportive Care in Cancer
Article numberARTN 99
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Science & TechnologyLife Sciences & BiomedicineOncologyHealth Care Sciences & ServicesRehabilitationNutritionDietExperience-based co-designCancerPatient and carer experienceCare pathwayEXPERIENCESERVICESIMPROVENEEDSHumansCaregiversCritical PathwaysHealth PersonnelFocus GroupsNutrition TherapyNeoplasms8 Health and social care services research8.1 Organisation and delivery of servicesGeneric health relevance3 Good Health and Well BeingMedical and Health SciencesPsychology and Cognitive Sciences