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Collection and processing of personal data to evaluate cancer screening programmes - results of a survey of the German population in light of the bill 'early detection of cancer and cancer registries'
journal contributionposted on 2013-11-01, 00:00 authored by F Greiner, Sandra Nolte, A Waldmann, A Katalinic, E W Breitbart
In a representative German sample, 62.1% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regis-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.
Pagination751 - 753
PublisherGeorg Thieme Verlag
Publication classificationC2.1 Other contribution to refereed journal
CategoriesNo categories selected
Early Detection of CancerElectronic Health RecordsGermanyHealth Records, PersonalHumansInformed ConsentNeoplasmsPatient CompliancePatient PreferenceRegistriesScience & TechnologyLife Sciences & BiomedicinePublic, Environmental & Occupational Healthearly detectionscreeningGerman National Cancer Planevaluationrecord linkagedata privacy